Showing posts with label medical treatment. Show all posts
Showing posts with label medical treatment. Show all posts

Wednesday, October 23, 2019

I hate doctors, and I don't want to go (take two)




The title sums it all up. I hate doctors. When have they done anything good for me? Every time I go, it turns out to be "nothing".

So should I conclude that it will always be "nothing"? The "it hasn't happened up to now, so it won't happen in the future" philosophy sucks rocks because it's illogical. It simply isn't true.

I am at the age - God, I hate that word - where I maybe need to worry. This is the time people are told to have screening tests like colonoscopies (which I always call colostomies by mistake - I freaked out a friend once by telling her I was supposed to have one) which scare me half to death because I've been told they can be agonizingly painful. One health forum had a comment from someone who said she would take her chances with serious disease rather than go through that again.




My husband collapsed on the floor about a year ago, and paramedics and police rushed over. Made me wonder why everyone ignores me when I have a medical problem, but then, he's male and considerably older than me. It might be heart disease, after all (because we all know women don't have heart attacks!). In the hospital they put him through a meat grinder, doing every possible diagnostic test on him. The follow-up was even more rigorous, cardiac, neurological, urological, bowel and guts and everything else they could ream out.

The result was exactly nothing.

So I don't want to go to the doctor. I don't want to go to the doctor because I've had some symptoms lately that are probably nothing, but at the same time scare the hell out of me.




It's funny, because Bill and I have talked about how we can't afford to live as long as our parents did (all four them were well over 90). In fact, we may have trouble affording our 70s. We've joked that if we make it to 80, we'll kill each other, kind of like a duel where we both shoot at once. But what if he misses, and I don't? Will I be charged with murder, or merely self-defense?

It doesn't sound good.

I think about cancer, everyone does, or do they? I don't know, I don't interview everyone in the world, or on the street. The thing is, people with cancer are usually seen as heroes, brave souls who keep smiling no matter how much it hurts. In contrast, don't ever get a psychiatric problem, for no one will visit you in the hospital with flowers and balloons. They will not. Talk about being left alone, but that is what happens. At a time when you are at your most vulnerable and in need of comfort, people shrink back in dread. They don't even talk about it except in whispers. This is not an idle statement, but based on some 50 years' experience. But I am doubted there, too. How can I even think that people could be so callous?

But cancer, now! There's a great opportunity for bravery, for heroism, for stoicism in the face of pain, and lots and lots of warm get-well wishes. Flowers, candy, visitors to perk you up, tons of Facebook encouragement, and So Much More.




Do I sound just a little bit cynical? I have my reasons.

I don't think I have cancer. So why go? I have this niggling worry. Shouldn't I just ignore it? I have had alarming symptoms for EIGHT years, with no relief because I've been told "we can't find anything" and "there's nothing we can do". Do I want to be called a hypochondriac? But how can you be a hypochondriac if you hate doctors and stay away for years at a time?

There is something cold and frightening about the medical assembly line, the way you come out the other end feeling like dressed meat ready for the oven. There is a "NEXT!" feeling that only seems to get worse over the years. They literally call it "processing patients", and see nothing untoward about it. Too many patients, not enough time, because the equipment is absurdly expensive, the tests take forever and suck up resources, and it's usually for nothing. 

But we are stuck with it. In the past, if you had cancer, you just died. Probably horribly, because there wasn't even a good way to manage pain. Unlike today, when it's the banner illness that has spawned a million fundraising walks in every color of the rainbow, it was heavily stigmatized: people didn't even say the name. Probably this was fear, a dread that "something" had taken you over, colonized your body and was eating away at you beyond your control. This "something" would suck out the marrow from your bones, cause you to waste away to a skeleton, and probably drive away all but the most loyal family members who probably prayed that it would all be over soon.




All kinds of stuff has been written about illness, its social and emotional significance, etc. Usually the sufferer is blamed for not having it all together emotionally, for having "unresolved issues" (as if everyone doesn't have those). I wonder now if it isn't just bloody bad luck. Have you noticed how unevenly luck and blessings are distributed in life? Ain't it a bitch, and don't you wish it was different? People still get sick and die, in spite of all that fancy equipment. I've had five friends die in the last few years, and three of them were only in their mid-50s. One who was exactly my age at the time pulled his truck over, opened the door, and fell to the ground dead. Perhaps his fate was better than the woman who battled breast cancer for years, or Glen, one of the most beautiful men I have ever known, who escaped from a psych ward, swallowed a bottle of pills, and was found frozen to death beside the railroad tracks.




Oh, and that's another thing: the war imagery we use, especially for cancer. She "battled" breast cancer, she "waged a valiant struggle", and sometimes she "triumphed" or scored a "victory" over it. I wonder why we do this. No one questions it, and when no one questions something I just get furious because we are PEOPLE, not cattle! My feeling has always been that you should question everything, especially loony social trends. The war imagery not only renders the sufferer especially valuable for being a "good soldier" (and we still think the military is special, no matter what anyone says), it places the whole thing at a safe, fictionalized distance, as if we're watching a World War II movie on TV or going to the Cenotaph for 45 minutes to watch old men stand in the rain.

Ah, the stoicism, the smiling in the face of doom. I wonder why people feel they have to do this, why it has become such a cultural imperative. If I had cancer, I think I'd raise bloody hell and be so hard to get along with, NO ONE would come visit me (a situation I should be used to by now). Then again, maybe I'd be terrified. I know I would not be stoical. I'd be shit-scared and probably miserable from all the clinical attention, the being fed through machines with no one talking to you.




I've heard it said that quite often, when you get your diagnosis, the doctor comes in the room, says to the patient "you have cancer", then turns and leaves you sitting there alone. If I don't go, I won't hear that, will I? These guys are sons-of-bitches, aren't they? Are there any good ones? Well, OK, my brother-in-law, he's a Gunning man and as far as I'm concerned they're all great, but he lives all the way across the country.

If I don't go, I don't need to hear any of that shit. But if I don't go, this little scritchy-scrabbly feeling in my gut may not stop for a long time. If ever.





Friday, February 8, 2013

It's my colon, and I'll write if I want to




I wasn’t going to write about this, I swear I wasn’t. NOTHING is more boring or more elderly than someone writing about an operation or a medical procedure.

But it’s Friday and I'm a little short of ideas, so. . . 

There wasn’t a lot of evidence I had anything wrong with my colon, except vague symptoms. I don’t even want to call them symptoms, because that word implies there is some sort of evidence of disease, and how do we know we have the disease if we haven't had the tests yet?





It’s something proven backwards, like menopause. “When did you go through menopause?” a (younger) friend of mine recently asked me.

“Uh. . . “

I had no idea what to say. What exactly does it mean to “go through menopause”, since “menopause” is so vaguely defined?

You can only conclude that your menses have permanently ceased if you have had no menstrual periods for one year. Does that mean you are “going through menopause” during that year? Or has menopause already ceased  (since, whether you know it nor not, you're done with periods forever)?  

How do you know, anyway? They could start again at any moment. Or not. 




And what about the five to ten years of turbulence before that permanent cessation that marks the “end” of menopause, or at least of your fertile years? (And by the way, a woman my age is always described as “menopausal”, no matter how many years have elapsed since that elusive "last" period). What about the hot flashes, the mood surges, the rollercoaster of missed and erratic periods, the the the -

I'm a little off-topic here. I am now well past all that, but now new “symptoms” (or thingamabobs, things that bother me at least a little bit) are emerging. Things that seem to be happening in my belly, or should I say lower down, in my gut.

Isn’t that kind of where we all live? I’ve heard there is more serotonin in your gut than in your brain. I have also heard the theory that there is a second brain in the gut, a sensor or reactive network of nerve endings that is so responsive, it practically has the capacity to think.

Does it also make decisions? Such as: "OK, your time is up"?






I’ve also heard all the theories about unresolved this and unrequited that. I suppose it’s got credence. My life, at least professionally,  has pretty much been an exercise in frustration. Though I know I have talent as a writer, I have had barely any recognition, and no money. This is not supposed to matter, by the way, because I am an “artist” who doesn’t need such things. And wanting it is crass and egotistical.

Meantime, every other talented person I know in every other field is accomplishing rings around me, and making good money, and I’m not supposed to mind!

I suppose this might cause some turmoil somewhere, in my brain at least, but in my gut? Maybe.

Some call this “the revenge of the unlived life”. I have never been able to place my work with anyone/anywhere where it can fulfill its potential, or what I think is its potential.  I doubt if I have enough time left to do so. It’s not a question of “gee, I want to be a writer” or writing one chapter of something and ditching it, or getting one rejection (boohoo into my pillow, get drunk, and quit). I'm not a chipper, folks. I'm serious, and I have been for my whole life.





What this has to do with getting a camera shoved up my bunghole is mysterious, but it might relate somehow. Or not. It fascinated and repelled me, the idea of this sewer snake, this Roto Rooter exploring all those twists and turns inside me. But I had become frightened by possibilities that I did not want to think about, and I was surprisingly willing to have the "procedure" done, if only to allay my anxiety.

A close friend of mine shed some light on all this. “Cancer is so out there now,” she said. “It used to be in the closet, and nobody ever mentioned it. Now it has jumped out like a jack-in-the-box and is in our faces every minute." Not only that. . . since there’s money in it, it’s being exploited – no, people’s fears are being exploited right, left and centre. Cancer has become an industry. 




Just this morning, my husband’s favourite magazine, Consumer Reports, arrived in the mail, with a cover story called “8 Cancer Tests You Don’t Need”. It was quite a revelation and reflected the fact that the medical community performs diagnostic tests on patients, not because they need to or the patients need them, but just because they can.

They have all this expensive equipment, for God’s sake, so how can they let it gather dust in the corner? So people are terrified into thinking they have cancer just because the technician (never a doctor) performs a test on them which is meant to screen for cancer.

Like “going through menopause”, it’s a backwards sort of thing. You’re having a “cancer test”; therefore you either have cancer, or MIGHT have cancer and should be worried, if not terrified, that you do.





Anyway, the hardest part of the procedure was the prep, which I’ve already written about in another post.  Fasting has never been my thing, and I don’t remember ever feeling that hollow. I won't write about the dreaded Pico Salax, which I kept calling Pico Iyer in my mind, though they don't look much alike, do they?





The day of the procedure was sort of dreamlike. I found, to my surprise, that I wasn't nervous, or not particularly. Like a dog at the vet's, I had relaxed into the inevitable. The hospital had been torn to pieces for some unknown reason, the inevitable turmoil that afflicts airports and other such public facilities so that you can never get anywhere on time. Then there was the massive water leak that had flooded the emergency ward a few days before, and was threatening to start up again.

For all that, I got there early (husband in tow: I was not allowed to leave the place without an escort to carry me in case I fainted from an anaesthetic hangover), and they let me go in right away. “In” meaning another snaking tunnel of corridors and “little rooms” with big machines in them. People came and went, either nurses or technicians, but none of them doctors. Doctors don’t belong in a hospital any more.





I was asked to take everything off except my shoes and socks, which seemed very odd, and put two gowns on, fore and aft. This was much better than the old idea of one gown which was open all down the back, a ludicrous and completely avoidable policy that was in place for 50. . . oh, skip it.

I was expecting a long wait, the “hospital wait” that seems to put you into another sort of time zone, but pleasantly enough, it didn’t happen: very soon, people started bustling around me and doing things. I sat next to a friendly elderly woman with a European accent (we were in a sort of waiting area for some reason, perhaps because the “little room” was flooded) and chatted about this and that while the nurse (technician?) draped a warm blanket over my arm. Pleasant, though I had no idea why it was there. Then she came back and said, “I’m putting the IV in now."

IV?! Oh God. Sqeam, went my guts, squeam. I remembered all the times that technicians couldn’t get blood out of me and sometimes became almost hysterical, blaming me for having “difficult veins”. So what would happen with something this intrusive, this horse needle? 

“Do you faint when you have blood taken?” 

“No.” I lied; it had happened once when I was pregnant a million years ago and they couldn’t find a vein.

She began to work on the back of my hand, which worried me even more. I didn't watch, as I never do: I don't see why I should. Strangely, after the usual one-second jab, there was no pain at all. Another nurse (technician?), who seemed to be just sitting around with a clipboard, said something like, “Good one!”, so I felt better. I also felt something running down my hand. “Oops, better wipe this up in case a patient sees it.”

Ye gods.

While all this happened, the lady with the European accent told me that she had a very low threshold for pain. I had the impression she had been ill for a long time. Her husband, who was French, sat across from her, looking much more nervous than she was and biting his nails.

Then it was time to go clomping into the room with the weird machine in it.

I lay back on a bed which seemed to be constructed of chrome bars. There followed a surreal few minutes in which I felt like Whitley Streiber in that Alien novel: several people were swarming busily around me, putting an oxygen thingie in my nose, sticky things for a heart monitor (heart monitor? For a colonoscopy??) on my chest, putting a blood pressure cuff on my arm and connecting my hand to the tube-thingammy for the anaesthetic. I felt a weird, cold, creeping sensation on the back of my hand.





Speaking of Whitley Streiber, they wasted no time on the “probe” which quickly went to its mark. The first few minutes were not pleasant at all, and the hard, almost violent pokes made me jump and even yelp a bit. “Breathe”, the technician (nurse?) said.

I breathed. After a while I sort of lost track, went into a dreamy state. This is not total anaesthesia, but a sort of twilight state in which you can still answer questions (“Is God real?”), but can’t just jump up off the table and leave. It seemed that only about five minutes had elapsed before I heard a “There,” and was “unplugged” swiftly in all five places with no pain at all.





Those aliens really know their stuff.

Then I was wheeled out of that little room into a sort of curtained-off place (which is what hospitals are now reduced to: not long ago the media discovered that Vancouver General Hospital was placing beds full of emergency patients in a doughnut shop adjacent to the hallway). It was nice, nice. I was just lying there, thinking, it’s over, then someone put Bill in a little curtain-y place beside me (he had stayed out in Reception, thinking he wasn’t wanted, which he wasn’t until I needed to go home). He said hi, then went back to where he was supposed to go.

I just lay there thinking, it’s nice.






Then I guessed I had to walk, and it was strange because all that up-and-downstairs, across parking lots, more up-and-downstairs, muddy roads, etc. etc. which I had dreaded on the way back didn’t bother me one bit because I was two  feet off the ground trailing vapor like the Ghost of Christmas Past.

So that was it, pretty much straightforward, assembly-line medicine, and I was very glad to be told (before I left!) that they hadn’t found a thing that was out of the ordinary. All clear. My guts were clean as a whistle.




But there is another part to this story that I sort of remembered retroactively. While I recovered in the little curtain-y place, I heard moans and cries. Then I realized the elderly lady with the European accent was having her colonoscopy in the same room that I had just come out of.  I now understood why her husband had been chewing his nails. The cries went on and on. At one point a nurse (?) went in there, and I heard her say, “Instead of screaming, breathe.” And that was the last I heard of her.

Thursday, October 25, 2012

I hate the doctor, and I don't want to go



The title sums it all up. I hate doctors. When have they done anything good for me? Every time I go, it turns out to be "nothing".

So should I conclude that it will always be "nothing"? The "it hasn't happened up to now, so it won't happen in the future" philosophy sucks rocks because it's illogical. It simply isn't true.

I am at the age - God, I hate that word - where I maybe need to worry. This is the time people are told to have screening tests like colonoscopies (which I always call colostomies by mistake - I freaked out a friend once by telling her I was supposed to have one) which scare me half to death because I've been told they can be agonizingly painful. One health forum had a comment from someone who said she would take her chances with serious disease rather than go through that again.




My husband collapsed on the floor about a year ago, and paramedics and police rushed over. Made me wonder why everyone ignores me when I have a medical problem, but then, he's male and considerably older than me. It might be heart disease, after all (because we all know women don't have heart attacks!). In the hospital they put him through a meat grinder, doing every possible diagnostic test on him. The follow-up was even more rigorous, cardiac, neurological, urological, bowel and guts and everything else they could ream out.

The result was exactly nothing.

So I don't want to go to the doctor. I don't want to go to the doctor because I've had some symptoms lately that are probably nothing, but at the same time scare the hell out of me.




It's funny, because Bill and I have talked about how we can't afford to live as long as our parents did (all four them were well over 90). In fact, we may have trouble affording our 70s. We've joked that if we make it to 80, we'll kill each other, kind of like a duel where we both shoot at once. But what if he misses, and I don't? Will I be charged with murder, or merely self-defense?

It doesn't sound good.

I think about cancer, everyone does, or do they? I don't know, I don't interview everyone in the world, or on the street. The thing is, people with cancer are usually seen as heroes, brave souls who keep smiling no matter how much it hurts. In contrast, don't ever get a psychiatric problem or you will be more or less seen as a fuckup. No one will visit you in the hospital with flowers and balloons because it's your own freaking fault you're there. Their ancient, deeply-buried dread of demonic possession will keep them away. But cancer, now! There's a great opportunity for bravery, for heroism, for stoicism in the face of pain, and lots and lots of warm get-well wishes.




Do I sound just a little bit cynical? I have my reasons.

I don't think I have cancer. So why go? I have this niggling worry. Shouldn't I ignore it? Do I want to be called a hypochondriac? But how can you be a hypochondriac if you hate doctors and stay away for years at a time?

There is something cold and frightening about the medical assembly line, the way you come out the other end feeling like dressed meat ready for the oven. There is a "NEXT!" feeling that only seems to get worse over the years. Too many patients, not enough time, because the equipment is absurdly expensive, the tests take forever and suck up resources, and it's usually for nothing. After all, somebody important might come in.

But we are stuck with it. In the past, if you had cancer, you just died. Probably horribly, because there wasn't even a good way to manage pain. Unlike today, when it's the banner illness that has spawned a million fundraising walks in every color of the rainbow, it was heavily stigmatized: people didn't even say the name. Probably this was fear, a dread that "something" had taken you over, colonized your body and was eating away at you beyond your control. This "something" would suck out the marrow from your bones, cause you to waste away to a skeleton, and probably drive away all but the most loyal family members who probably prayed that it would all be over soon.




All kinds of stuff has been written about illness, its social and emotional significance, etc. Usually the sufferer is blamed for not having it all together emotionally, for having "unresolved issues" (as if everyone doesn't have those). I wonder now if it isn't just bloody bad luck. Have you noticed how unevenly luck and blessings are distributed in life? Ain't it a bitch, and don't you wish it was different? People still get sick and die, in spite of all that fancy equipment. I've had five friends die in the last few years, and three of them were only in their mid-50s. One who was exactly my age at the time pulled his truck over, opened the door, and fell to the ground dead. Perhaps his fate was better than the woman who battled breast cancer for years, or Glen, one of the most beautiful men I have ever known, who escaped from a psych ward, swallowed a bottle of pills, and was found frozen to death beside the railroad tracks.



Oh, and that's another thing: the war imagery we use, especially for cancer. She "battled" breast cancer, she "waged a valiant struggle", and sometimes she "triumped" or scored a "victory" over it. I wonder why we do this. No one questions it, and when no one questions something I just get furious because we are PEOPLE, not cattle! My feeling has always been that you should question everything, especially loony social trends. The war imagery not only renders the sufferer especially valuable for being a "good soldier" (and we still think the military is special, no matter what anyone says), it places the whole thing at a safe, fictionalized distance, as if we're watching a World War II movie on TV or going to the Cenotaph for 45 minutes to watch old men stand in the rain.

Ah, the stoicism, the smiling in the face of doom. I wonder why people feel they have to do this, why it has become such a cultural imperative. If I had cancer, I think I'd raise bloody hell and be so hard to get along with, NO ONE would come visit me (a situation I should be used to by now). Then again, maybe I'd be terrified. I know I would not be stoical. I'd be shit-scared and probably miserable from all the clinical attention, the being fed through machines with no one talking to you.




I've heard it said that quite often, when you get your diagnosis, the doctor comes in the room, says to the patient "you have cancer", then turns and leaves. If I don't go, I won't hear that, will I? These guys are sons-of-bitches, aren't they? Are there any good ones? Well, OK, my brother-in-law, he's a Gunning man and as far as I'm concerned they're all great, but he lives all the way across the country.

If I don't go, I don't need to hear any of that shit. But if I don't go, this little scritchy-scrabbly feeling in my gut may not stop for a long time. If ever.