I hate doctors, and I don't want to go (take two)

The title sums it all up. I hate doctors. When have they done anything good for me? Every time I go, it turns out to be "nothing".

So should I conclude that it will always be "nothing"? The "it hasn't happened up to now, so it won't happen in the future" philosophy sucks rocks because it's illogical. It simply isn't true.

I am at the age - God, I hate that word - where I maybe need to worry. This is the time people are told to have screening tests like colonoscopies (which I always call colostomies by mistake - I freaked out a friend once by telling her I was supposed to have one) which scare me half to death because I've been told they can be agonizingly painful. One health forum had a comment from someone who said she would take her chances with serious disease rather than go through that again.

My husband collapsed on the floor about a year ago, and paramedics and police rushed over. Made me wonder why everyone ignores me when I have a medical problem, but then, he's male and considerably older than me. It might be heart disease, after all (because we all know women don't have heart attacks!). In the hospital they put him through a meat grinder, doing every possible diagnostic test on him. The follow-up was even more rigorous, cardiac, neurological, urological, bowel and guts and everything else they could ream out.

The result was exactly nothing.

So I don't want to go to the doctor. I don't want to go to the doctor because I've had some symptoms lately that are probably nothing, but at the same time scare the hell out of me.

It's funny, because Bill and I have talked about how we can't afford to live as long as our parents did (all four them were well over 90). In fact, we may have trouble affording our 70s. We've joked that if we make it to 80, we'll kill each other, kind of like a duel where we both shoot at once. But what if he misses, and I don't? Will I be charged with murder, or merely self-defense?

It doesn't sound good.

I think about cancer, everyone does, or do they? I don't know, I don't interview everyone in the world, or on the street. The thing is, people with cancer are usually seen as heroes, brave souls who keep smiling no matter how much it hurts. In contrast, don't ever get a psychiatric problem, for no one will visit you in the hospital with flowers and balloons. They will not. Talk about being left alone, but that is what happens. At a time when you are at your most vulnerable and in need of comfort, people shrink back in dread. They don't even talk about it except in whispers. This is not an idle statement, but based on some 50 years' experience. But I am doubted there, too. How can I even think that people could be so callous?

But cancer, now! There's a great opportunity for bravery, for heroism, for stoicism in the face of pain, and lots and lots of warm get-well wishes. Flowers, candy, visitors to perk you up, tons of Facebook encouragement, and So Much More.

Do I sound just a little bit cynical? I have my reasons.

I don't think I have cancer. So why go? I have this niggling worry. Shouldn't I just ignore it? I have had alarming symptoms for EIGHT years, with no relief because I've been told "we can't find anything" and "there's nothing we can do". Do I want to be called a hypochondriac? But how can you be a hypochondriac if you hate doctors and stay away for years at a time?

There is something cold and frightening about the medical assembly line, the way you come out the other end feeling like dressed meat ready for the oven. There is a "NEXT!" feeling that only seems to get worse over the years. They literally call it "processing patients", and see nothing untoward about it. Too many patients, not enough time, because the equipment is absurdly expensive, the tests take forever and suck up resources, and it's usually for nothing. 

But we are stuck with it. In the past, if you had cancer, you just died. Probably horribly, because there wasn't even a good way to manage pain. Unlike today, when it's the banner illness that has spawned a million fundraising walks in every color of the rainbow, it was heavily stigmatized: people didn't even say the name. Probably this was fear, a dread that "something" had taken you over, colonized your body and was eating away at you beyond your control. This "something" would suck out the marrow from your bones, cause you to waste away to a skeleton, and probably drive away all but the most loyal family members who probably prayed that it would all be over soon.

All kinds of stuff has been written about illness, its social and emotional significance, etc. Usually the sufferer is blamed for not having it all together emotionally, for having "unresolved issues" (as if everyone doesn't have those). I wonder now if it isn't just bloody bad luck. Have you noticed how unevenly luck and blessings are distributed in life? Ain't it a bitch, and don't you wish it was different? People still get sick and die, in spite of all that fancy equipment. I've had five friends die in the last few years, and three of them were only in their mid-50s. One who was exactly my age at the time pulled his truck over, opened the door, and fell to the ground dead. Perhaps his fate was better than the woman who battled breast cancer for years, or Glen, one of the most beautiful men I have ever known, who escaped from a psych ward, swallowed a bottle of pills, and was found frozen to death beside the railroad tracks.

Oh, and that's another thing: the war imagery we use, especially for cancer. She "battled" breast cancer, she "waged a valiant struggle", and sometimes she "triumphed" or scored a "victory" over it. I wonder why we do this. No one questions it, and when no one questions something I just get furious because we are PEOPLE, not cattle! My feeling has always been that you should question everything, especially loony social trends. The war imagery not only renders the sufferer especially valuable for being a "good soldier" (and we still think the military is special, no matter what anyone says), it places the whole thing at a safe, fictionalized distance, as if we're watching a World War II movie on TV or going to the Cenotaph for 45 minutes to watch old men stand in the rain.

Ah, the stoicism, the smiling in the face of doom. I wonder why people feel they have to do this, why it has become such a cultural imperative. If I had cancer, I think I'd raise bloody hell and be so hard to get along with, NO ONE would come visit me (a situation I should be used to by now). Then again, maybe I'd be terrified. I know I would not be stoical. I'd be shit-scared and probably miserable from all the clinical attention, the being fed through machines with no one talking to you.

I've heard it said that quite often, when you get your diagnosis, the doctor comes in the room, says to the patient "you have cancer", then turns and leaves you sitting there alone. If I don't go, I won't hear that, will I? These guys are sons-of-bitches, aren't they? Are there any good ones? Well, OK, my brother-in-law, he's a Gunning man and as far as I'm concerned they're all great, but he lives all the way across the country.

If I don't go, I don't need to hear any of that shit. But if I don't go, this little scritchy-scrabbly feeling in my gut may not stop for a long time. If ever.

It must have been owls

This was an odd day, an odd week, and sometimes considerably worse than odd. You see, after my last routine mammogram, I got the dreaded "call back". They wanted to take a more detailed mammogram, along with an ultrasound. Fine, I thought, except these retakes generally meant that they "found something", and that couldn't be good. So I went through it all again, they squeezed and kneaded and poked and pressed, I got all covered with KY Jelly or whatever-it-is they use to lubricate your skin while they look underneath it.

They concentrated on my left breast, where they seemed to think the "problem" was. By the time they got done, I knew how a waffle must feel while it is being baked. Or at least, my left breast did. I could practically see the grid-marks.

A few days went by. I was prepared to let it go, assuming everything was fine, when I got another call back. I was supposed to see my doc so she could "go over" the results of the second mammogram.

Go over.

Go over? What was this about? I was expecting either nothing (the usual response to a normal test), or a call saying "your test is negative," or something like that. But this.

So I tried to keep my head out of it all week, and I was more-or-less fine until last night, when for the first time in a while I couldn't sleep. It was as if an icicle were slowly turning in the centre of my abdomen. All night.

Sometimes I think I want to lay it down, just give up, because, after all, I have achieved very few of my dreams, in spite of what often seems like mammoth (futile) effort. Then when something like this comes up, when I feel the hot breath of mortality blasting down my neck, I hear some voice in my head, some idiot but triumphant, desperate, ridiculously valiant and probably absurd voice shouting out loud:

"I want to live!"

It was like a pendulum, see, between the nice, logical "Ah, nothing's the matter, it never is, statistics are all in your favour, callbacks are common," etc. etc. (no family history, everyone lives to be over 90, etc.) and a violent swing in the other direction, a silent totting up of all the victims, people I had known, loved, or even just heard about, who had either survived breast cancer after a long and horrendous ordeal, or hadn't survived at all. I began to wonder if the "thing" that rides around with me, beside me I mean, always clamped to my peripheral vision, would suddenly rear up in front of me and make it impossible to take another step.

In the doctor's little room today, you know, the little room they tell you about on Seinfeld, while waiting for the doctor, I had to do deep breathing, deep slow breathing to try to relax the knot of primal terror in my belly. The doctor comes in. How are you? Fine. Oh God. The doctor sits down at the computer. So what are we doing today? MY GOD SHE DOESN'T KNOW?? No, she has been away from the office for a week and has no idea why I have come in today. This means that no one sitting in this room has any idea what it says on my report.

So she blinks and flips and scrolls and "hmmmmms", like she always does, and asks me the usual incredulous questions. So what happened when they examined you? What did they say? It says here they saw a bruise. Did they see a bruise? Yes, I had some sort of little bruise - I don't know where it came from - Oh, I see. It must have been in the spot, see here - look - where they thought you might have a cyst. Well, yes, it was. They put a sticker on it. A what? A sticker, so the ultrasound person could - Oh.

You had a bruise, Margaret, a small one that mimicked some little probably-harmless cyst, though in six months you will have to go through all the testing again in case. In case what?

It's late at night, and I sit here tired, having dodged a certain bullet, or gotten out of Dodge, or whatever it is. Strangely, a few minutes ago I heard a ghostly trilling, as if boys were hooting at each other over long distances, but after a while I realized it must have been owls. They were as resonant and loud as if they were right outside my window, and with all that thick bush out there, just a stone's throw away, perhaps they were. They might have been right in my own back yard.

Post-script. Yes, it was owls! The Cornell Laboratory of Ornithology site has helped me identify many a species through sound alone. In this case, the calls of  various common owls allowed me to compare, and quickly make a match. Looks like these were barred owls, and they were very close to the house, maybe even in the back yard. We have huge rich cedars out there, so it makes sense. One row of houses in back of us, and we're in dense bush. But if these were birds, I could not believe the volume! These things fairly boomed. The sound moved around in a bizarre way, too. I kept thinking, that has to be kids making ape noises, but the sounds simply weren't human. These birds make a hell of a racket! They have a lot of different calls too, some of them sort of trilling (chilling). Since their territory is the Pacific Northwest, I think we're close enough (though they resemble the rare spotted owl in plumage - but not in voice). I couldn't see anything out there, but I'll be vigilant from now on, that is, until colder weather necessitates keeping my office window shut. This page has a rich variety of sample calls. Listen to these guys, you'll be totally spooked out!

http://www.allaboutbirds.org/guide/Barred_Owl/sounds

https://www.youtube.com/watch?v=Id2A8yC_JJY

Blood sacrifice: or, why I hate going to the clinic

This is still so traumatic that I haven't even been able to write about it in my private journal. I sit here this morning after a lousy night, waking repeatedly and full of anxiety, trying to get through my giant mug of coffee and make sense of it all.

I'm not sure yet if I was the victim of medical mauling, or my own aging physiology. Though the pictures here are trying to help me play this for laughs, it wasn't too goddamn funny.

For medical reasons I won't go into, I need to give blood samples at intervals for analyses of cholesterol, glycogen, that kidney stuff I can't remember - all that shit - so there's no way around this visit to the clinic and the dreaded arm-stick.



Does it make sense to you to say I've never enjoyed this? Eons ago when I was pregnant, we first ran into my little problem: the technician (I think it was a nurse back then, before every medical procedure was farmed out to a different specialist)could not always score a direct hit on a vein. This involved (if they were shitty at it, which most of them were) repeated poking, twisting, trying the other arm, and a growing irritability towards ME for holding things up with my difficult veins.

Back then, if it didn't go well, I'd really hold things up by fainting. By now I've got past all that, but in recent years, after a stretch of relative normalcy (i.e. only five or six tries, leaving a black and blue mark 2 or 3 inches in diameter), things got much worse.

At first it was intermittent: some days the technician (usually one of the more competent ones who show up randomly on good days) seemed to get it bang-on and it would all be over relatively quickly. Sometimes it took forever because the needle was not all the way in or in at an angle, and the slow, painful dripping would go on and on. I needed to fill four or five of those little bottle-y things for some reason, and I wouldn't watch, though the technician acted surprised that I didn't want to eyeball the whole procedure (complete with a needle lifting up the skin in a point as it cranked around and around and around in a futile search for a viable vein). I had learned to cope, and as usual my coping methods were suspect and probably wrong.

There were some highlights, or lowlights to this process. Once a hysterical-looking technician had an anxiety fit and asked me, almost wild-eyed, if I was always like this and what was the matter with me. She had insisted on applying the tourniquet very loosely on top of a thick sweater to avoid bruising, though none of the others ever did this. She seemed to be sweating with dread. It took her a long time, but at least she didn't call in a second technician, something that seemed to be happening with alarming frequency.

To call in a backup is a disgrace because it makes them look incompetent, wastes a lot of time (there are other customers waiting, after all, customers with normal-sized veins),and make no mistake, *I* am the cause of this holdup and making everyone look bad. I'm making it look as if they don't know their stuff!

The fact that every so often someone would show up, touch my arm with a fingertip, aim, shoot, and hit it bang-on with no trouble, drawing the sample in 2 minutes, did make me wonder about competence and dealing with non-standard veins. But in reality, my veins were treated like an aberration, something they had never seen before, as if I had walked in with two heads.

The explanation, if I got one at all, was that my veins were small, deeply set in my arm, and moved around a lot (probably because they were small and deeply set in my arm). Trying to inflate them with a super-tight tourniquet seemed like a good idea to me, but they wouldn't do it because their training told them they weren't supposed to.

The over-the-sweater-sleeve tourniquet technique may be OK for a normie, but for me it's a disaster. But I can't tell them to make it tighter, can I? I will get that "whaaaaaat?" look. And why don't they do that little two-fingered tap-tap on the spot any more? Will it be too traumatic and painful? Will it cause. . .  bruising? But it can't cause the kind of lead-pipe black-and-blue mark I come away with after a typical bloodletting ordeal.

Can I even pick a "worst"? At least up until yesterday's debacle, that would be the young trainee who poked and prodded in the usual way, skidded over my arm which finally began to bleed furiously (though not into the tube), giggled, yanked it out, halfway capped the tube and began shaking it violently. Blood flew through the air and splashed all over the front of my blouse, ruining it. She giggled some more. "Gee! That's never happened to me before!"

Translation: there must be something wrong with YOU. You are a freak. A nineteen-foot-tall Atomic Woman stalking Port Coquitlam. 



When I try to tell this story to anyone with a medical background, they say something like, "Oh, that didn't happen. The cap can't come off like that. You couldn't be sprayed with blood." It's great to be listened to, isn't it? How I wish now that I had immediately complained to the front desk, ripping open my jacket to expose the gobs of gore.

So on it went, every three months forever. The bad episodes were intermittent, and I found tricks that I thought worked, kneading and slapping the crook of my arm, swinging my arm as I walked over to the clinic, pumping gallons of water like someone said I wasn't doing. 

Whistling in the dark. Putting out a forest fire by peeing on it. Peeling a turnip with a stone.

So yesterday it gets bad. WAY bad. I arrived on time, sat dutifully in the waiting room and was able to go in almost right away. I said a little prayer, not so much for my inaccessible veins as for the idiots who couldn't find one and turn on the tap.

This was it, the day it got more than bad. WAY more.

The technician walked in. She was one of the more senior ones and seemed to know what she was doing. But on her first poke, her face fell in that dreaded, all-too-familiar, this-is-going-to-take-up-way-too-much-time way.

"Is the other side any better?" She had done me maybe fourteen times already, but acted as if she had no idea who I was and addressed me as a complete stranger.

"No."

"Let's try it, then."

No dice, just nothing. That little gleaming device was like a drill-bit, twisting around and poking and jabbing. I tried not to wince, but it hurt like hell and I knew it wasn't supposed to.

"Sorry, am I hurting you?"

"Oh, no."

Then came the dreaded "calling in another technician" manoevre.

A younger woman with long dark hair and glasses, very poised, very serious, almost doctor-like in her sense of entitlement, swept in. A resident fulfilling a training requirement, maybe. (She was even holding a clipboard.) There was something Special about her. She was the one they called in for Special Cases, when someone became hysterical, fainted or attacked someone in frustration after being fruitlessly drilled for half an hour.

"Let's see what we have here," she said, crisply and calmly, not making eye contact.



She shook her attractive medical head and began to poke into me again.

"Oh, sorry, no, we can't. . . " Weirdly, the first technician hung around. That had never happened before.

At one point I noticed her pressing on my opposite wrist, which already had a huge, godawful plastic clamp on it that left a red welt.

After ten or fifteen pointless minutes, during which I gabbled on and on in explanation, irritating them as I always do when I try to explain anything I clearly don't understand (though not explaining would be even worse because I was being unco-operative and sullen), they gave up on the traditional method. The two of them were beginning to turn away and whisper to each other. I was alarmed. I heard words like "butterfly" and "back of the hand".

They used the butterfly. I've had the butterfly before, and it's no big deal, just another method of jabbing your flesh to suck up your blood, but the butterfly didn't work this time.

At all.

Not a drop.

Now they were really nonplussed. (Yes, that is correct, so don't correct me! Look it up.) They kept looking at my right hand and pressing down and pumping it. Anything there? You would have thought so: I'm old enough now to have those blue veins you see on little old ladies.

"Will this hurt?" I shouldn't have asked: I'd had the back-of-the-hand treatment before, and I knew it hurt.

"Yes, it hurts most people, but we'll try to be quick."

Quick, like. . . ten more minutes?

I stayed calm, but at a cost. I prayed they would get something, even a little bit. Suddenly I remembered a dreaded word as they stepped away to whisper and natter at each other yet again. 

Cutdown.



I knew that if they couldn't get blood any other way, they just used a scalpel and cut you open. Presumably they tied off the vein after the Niagara Falls of blood gushed across the room.

"Oh, no, that's only in the hospital." The two of them, alarmed, looked at each other uneasily. She was having delusions, wasn't she?

Meanwhile, the hand thing wasn't working at all. I had my eyes closed and willed myself to relax, but the first technician took it as dread and panic and asked me - no, I am not kidding about this, "Would you like me to hold your hand?"

"Oh, wait. I think I see something."

A drop!

"Uh, yes, but. . ."

"It's very, very slow."

Drip.(25 seconds)

Drip. (25 seconds)

Drip. (25 seconds)

Drip. (25 seconds)

It took almost half an hour to partially fill a vial, and they were not at all sure it was enough. I prayed they would put the cap on before they shook it. There came another round of flustered, whispered consultation.

I was a freak, a weirdo, something they had never seen in their lives before.

THEY WERE TRYING TO GET BLOOD FROM A TURNIP.

Then came the reasons why, all having to do with me. "You're dehydrated, dear. You'll have to start drinking water."

I didn't know how to tell her that I always pound back water before a test: it helps my creatinine levels. (THAT'S the shit from my kidneys.)

"Maybe you're a little bit anemic." My hemoglobin was always routinely tested, and it was normal. Had never been abnormal. But they treated me as if they could see through me.

"You do look a little blue," the entitled one said.

I can't imagine why.

No one apologized, but there was a funny feeling *I* should have, for taking up 40 minutes for what should have been a 3-minute procedure. At least there was no indelible gore-splatter down the front of my blouse.

I decided then and there to change clinics, but what good would it do? If I started fresh and just told them nothing, might they just score first try? Bingo?

Of course I had to look all this up on the internet, and two seconds later I hit pay dirt. It was a forum about donating blood, and one woman recounted in frustration being turned away because she had "bad veins".

"My veins are small and deep and they slip around and they can't seem to get into them at all. The butterfly doesn't work, the back of the hand doesn't work. Nothing works."

Another post: "Why are my veins so hard to access? The technicians are getting really annoyed with me. The veins are small and deep and they slip around and they can't seem to. . . "

Fifty thousand entries later, all of them virtually identical, a picture was emerging.

SURPRISE. Some people's veins are not very accessible because they are . . . you get the picture. But at the clinic, they were anxious, astonished and even irritated to find that they just couldn't get me to act like a stuck pig, no matter what they tried. In fact they behaved as if they had never seen anything like this in thirty years of experience.

I have often had the experience, when trying to explain something to a medical person, that they think I'm  making up stories. At very least, it's hypochondria, being dramatic and inflating my symptoms out of sheer narcissism. Was my body lying to them this time, I wonder? Being narcissistic, or deliberately making a fool of them? Apparently.

Almost worse is something I hear often when I make the mistake of "sharing" my experiences with anyone. The listener's eyes fly open and they say, "Oh, that's never happened to ME!" This is called "empathy" and is more common than you might think.

Though such people always advise you (right after telling you to throw away those pills and take milk thistle) to make medical people do what you want, it's a great way to attract the hostile stare. And whatever you do, do not ever, ever, EVER mention the internet to a doctor, or their eyes will glaze over. "Don't go on the internet," I've been told, how many times? Medicine hates the information age because it penetrates the hallowed brotherhood that began eons ago with the local shaman.

I didn't cry or whimper or faint, though many people routinely cry and whimper and faint even when their blood-draw is quick and painless. But I don't look forward to going through this every three months. Hell, the back-of-the-hand thing is foolproof, it HAS to work!

I can't go back there because, against reason, *I* am embarrassed. I will try another place. But if they come at me with a scalpel, I am out of there.

Post-blog observations. It's been a while since I originally posted this, and yes, I DID find another lab. I didn't say a thing about my "little problem" because I wanted to see what would happen if they didn't know about it.

The technician, a brisk, no-nonsense lady with a Germanic accent, whisked into my vein and out again in about 30 seconds: no poking, no pain, just a direct stab and a steady flow of blood.

Miracle of miracles! But it HAD to be a fluke. I went back in three months, got a different technician, but exactly the same results.

This was a magic place!

And it went on for, oh, a year and a half at least. Pay dirt every time. Every three months, no matter who did the procedure, they always struck oil. And then. . . "something" happened.

I think it was a trainee or something, and she had some problems with me. She asked me all the usual questions: "Has this happened before? Does this always happen?" After all the usual drilling and twisting and pain, some blood came out. Slowly.

The next time wasn't much better. It was more difficult, time-consuming, clumsier, with more of those strange, uncomfortable "looks". This wasn't a new set of technicians. Some of them I'd already had before, with no problems.

Yesterday, it collapsed. The whole structure of hope and freedom from the sickening, accusing questions came crashing down on me. They couldn't get blood. "Does this. . . you know. . . has this. . ." The consternation, the projected shame at feeling incompetent which was somehow meant to be absorbed by the patient.

I have no idea what I'm doing: sucking my veins in, then letting them out again? I always drink water, etc., blather blather blather, and stand upside down and shake myself like a ketchup bottle for an hour before the drilling. No dice. Nevertheless, they always mention something I "should" be doing, some vital preparation no one told me about before, to avoid holding up the whole enterprise.

Last night I got a call from the lab. That's right. From the lab. There was something wrong with the sample they had finally, laboriously drawn. It had clots in it, making me think it had come out too slowly or had been contaminated in some way. So on a Saturday morning, because they close at noon, I have to go back in and go through the whole ordeal again, likely sitting for an hour in a patient-crammed waiting room full of whining toddlers, non-bathers and people clearing their throats every 30 seconds.

And when it's finally my turn to be stuck, being asked, in puzzled half-contemptuous amazement, "Has this ever happened to you before?"

Order The Glass Character from:

Thistledown Press 

http://www.thistledownpress.com/html/search/genre/Fiction/the_glass_character_p580.cfm

Amazon.com

http://www.amazon.com/Glass-Character-Margaret-Gunning/dp/1927068886/ref=sr_1_1?s=books&ie=UTF8&qid=1395534131&sr=1-1&keywords=the+glass+character

Chapters/Indigo.ca

http://www.chapters.indigo.ca/books/the-glass-character/9781927068885-item.html?ikwid=the%2520glass%2520character%2520margaret%2520gunning&ikwsec=Home

There is always one more. . . doll

I don't know what gets into me, I really don't. I can't leave it alone, and I never could.

A few posts ago I was talking about fan art, which I've never done before, mainly because I have no artistic sensibilities whatsoever and can't draw or paint to save my life. Once during a manic phase, I did a lot of abstract painting and was convinced it was REALLY GOOD and went around scanning it and sending it to everyone. Unfortunately, it was shit. I had no idea why everyone seemed so embarrassed.

I don't know how artists do it, except through true talent and determination.

I can't leave it alone. These dolls, these alabaster time-travellers created by the mysterious genius Marina Bychkova (a Vancouver girl, I'm happy to say) pull something out of me, something equally strange.

I want to unjoint them and take them apart and see how they work, or at least dress and undress them. Why? What's the matter with me? I hated dolls as a little girl.

I didn't even have any, except an execrable Debbie doll with a big head and permed black hair like my mother's, and an even worse one called Miss Debutante. Does the average eight-year-old know or care what a "debutante" is? It's a strange term at the best of times, and like "chatelaine" it has no male equivalent. I used to call her "Miss De-BUT-ton-ty", when I called her anything at all.

I did mummify my Barbie, and got some strange looks for it, even from my schizophrenic brother Arthur who seemed to be from some other planet. What can I say, I loved mummies and hated Barbie and it seemed like a good solution.

I can't play with dolls even now, I can't afford one as good as these, and feel a bit silly prowling around doll shows where people just hoard them. So this is my only way of playing. 

I have to reveal a secret: while I played with images today, I worried about a medical test I'm having in a week. I don't feel well and I haven't for some time, though as usual nobody has a clue about it because "you seem fine to me". When you've hidden depression and other kinds of wretched imbalance for nearly 60 years, you get awfully good at it.

This seems to be "physical", meaning "not my fault" and "not something I'm just making up to get attention that I could snap out of any time I wanted to, except I don't want to". It's weird, because part of me hopes there's something wrong, or at least something they can locate, so it won't be one of those vague situations where you KNOW there is something wrong but no one in the medical community will acknowledge it.

It seems a bit idiotic to say, "Gee, I sure hope they find something wrong."

But I do.

I have another secret, and now I will reveal it. I wanted to use one of those hideous birds by Hieronymus Bosch in my "fan art", but discovered it really wasn't do-able, any more than my equally bright idea to make my own Russian nesting dolls. But I did find this, some sort of hawk making that screaming noise they do. What struck me is that its mouth was a perfect mother-of-pearl-looking heart, so I used that as a basis for my fan art, or desecrations, or whatever they are.

It just worked so perfectly. 

The waiting list for the waiting list (or: I have a drug for that)

I don’t remember where I heard this – maybe in Moscow on the Hudson, one of Robin Williams’ earlier films, where he had not yet calcified into the parody of himself he is now. But it was a reference to being “in the lineup to wait for the lineup”. Do we think this only applies to the fucked-up Soviet system of inefficient callousness?

Substitute “medical” for “Soviet”, and you’re almost there.

I’ve been waiting to hear back from my doctor. I went in three weeks ago to address some alarming symptoms, the kind of thing that medical articles and TV doctors say you should follow up on immediately. I need a certain nasty-sounding test. It’s an up-the-ass sort of test that I don’t look forward to, a Roto-Rooter boring into my colon. I bailed on one of these tests a year or so ago, just couldn’t make it. This time there’s a serious reason for taking it, and I’m hearing nothing.

Maybe three weeks on the waiting list for the waiting list isn’t long, who knows. I have phoned twice to check up on it, and both times was hand-pattingly gotten rid of. In the nicest, we-know-who-you-are-you-hypochondriacal-old-bat way.

I didn’t think I had quite reached old-battitude yet, but I guess it’s a matter of degree. I don’t think of myself as a hypochondriac, but I once was told I was a “psycho-chondriac” because I dared to complain about clinical depression. Nowadays, they’d get down my neck if I didn’t complain. Don’t you know that’s a serious condition? Don’t you care about your health?

You don’t dare listen to medical specialists, especially not on TV where the more ludicrous the claim the better, because it “makes good television”. Soon the theory will be completely discarded, and of course anyone who goes to their doctor to have it checked out (as the medical “expert” never fails to insist that you should do) is looked at with that blank, incredulous, “what-the-fuck-are-you-talking-about-anyway” look.

And doctors also say “whatever you do, DON’T go on the internet about this.” I can see why, I really can. Lots of internet sites about health verge on black magic. Wave a dead cat over your head at midnight, and you’ll never have a heart attack again. Eat certain things, ingest herbs, roots, whatever they have for sale at an outrageous price, and your cancer will vanish and never come back.

But why can’t we get some basic information in this information age? Are the doctors, overloaded and harried and eager to install a revolving door in the office so they can yell “NEXT” every five minutes or so, any more useful for our enlightenment? Especially since they all have different philosophies and insist that theirs is the One True Religion.

I’ve noticed something else. My husband collapsed on the floor about a year and a half ago, and no one knew why. It was alarming to see him surrounded by police and ambulance attendants and paramedics. I had to stand back, way back, while they worked on my grey-looking life partner. Then came the barrage of tests. I don’t know how many tests, but he had to see many specialists, each of whom took a different part of the body and studied it.

Reminds me of that old story about the blind men and the elephant. It's a big piece of leather. No, it’s a thing like a hunk of rope. No, it’s a big chunk of ivory. No, it’s a – look out! It’s about to charge!

. . . PHHHHHHHHHHHHHHT!!

I do have a point. None of these specialists ever talk to each other or even send reports to one another. It is as if Bill had a separate heart, nervous system, brain, bladder, prostate, etc., component parts that were assembled like Lego or an old Meccano set. They weren’t parts of a person because these specialists are not concerned with a “person”. They are concerned with a piece of tissue, a hunk of organ. Never is the circulatory system connected to the heart, that’s insane! Nor is brain function tied to the nervous system. How absurd. They’re separate systems.

Frightening, is what it is. There is no consultation between experts, just conclusions, usually that everything is just fine and the patient is full of shit and whining for nothing.

Sometimes I want to bring back the days of the family doctor, like the wheezing old guy who carried a black bag into our house when I had the measles or the whooping cough. For a while after my first grandchild was born, there were three generations of my family seeing one physician. I’d had my doctor for nearly 15 years and recommended her to my daughter, who took her on, then started taking her infant daughter in to see her. It was an interesting throwback to a different time that is now completely obsolete.

Then she retired, and that was over and done. A child nowadays would have to go to a “pediatric specialist”, and if she was acting up a bit and stamping her foot and not paying much attention to parental commands, she’d be diagnosed autistic. ADD is now old-fashioned and has been pretty much phased out, like personality disorders in adults. The autism “spectrum” is the thing now, you see.  And by the way: I have a drug for that.

Oh, don’t get me going on psychiatric stuff, the way fads and fashions seem to dictate everything. Depressed women used to be given Valium, a highly addictive tranquillizer, which was about as sensible as taking a crowbar to someone with a concussion. Gay men were sick. They couldn’t help it, they were “immature” and their mothers were too dominant and their fathers were too weak. If they tried really hard, they might pass for hetero. But for the most part homosexuality was seen as a permanent mental illness, a serious one that disrupted the chance for a “normal” life.

For every action, there is an equal and opposite reaction. Simple physics. So now gay people – especially gay men in drag – prance around in pride parades, flaunting their “outness”. And we all smile, some of us a bit tightly, not daring to say we find the whole thing a bit silly, if not extreme. “Why aren’t there any heterosexual pride parades?” one unfortunate local politician once muttered, only to have so many bricks thrown at her that she never spoke again.

I’m not for going back to the barbaric model of “diagnosing” sexual orientation. But I don’t see psychiatric patients prancing around in parades celebrating the fact that they’re “out”.  They’re afraid, that’s why. Their condition is still very much medicalized, marginalized and stigmatized. There is no flexibility here, no individual definition of “normal”. You’re either a fuckup or you’re not. And if you’re not readily diagnosable, if you don’t fit any of the known (or should I say current/trendy) psychiatric categories, there will be hell to pay. You may even be told you’re untreatable and your condition is hopeless.

Do I sound a bit cynical about medicine? I wouldn’t go back to the days when no one even spoke the word cancer, or people in psychiatric distress were “put away”, often for life. (By the way, are you wondering now why I even mention psychiatric illness, when it obviously has nothing to do with “real” illness, “physical” illness that takes place in the body? Psychiatric illness takes place three feet above your head in a little white cloud with a nasty little man in it who spits on you every so often.)  I wouldn’t go back, but I couldn’t anyway, could I? There is no going back.

So I wait. If I do have cancer, which is extremely unlikely, then it is bubbling and festering away inside me even as we speak. It may be half a year before they can even tell, because I am waiting to see how long I will be waiting.

I’d like to see a horse doctor, please. If a horse has colic, they shove a big rubber hose into its rectum and blow a stream of warm water in it until the obstruction pops out. Sounds like a good idea to me.

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