Surgery without anaesthetic? It happened to me

This was going to be tacked on to my last post  about my hatred and dread of doctors,  but it  began to spill out of me dreadfully today and I couldn't make it stop. I just hope I don't lose followers, as I did last  time I expressed anything really painful.  Only celebrities can "admit" to  traumatic experiences like this and get a readership spike. The rest of us, apparently, get the opposite.

On Monday night I got a call, out of the blue, during supper, that I had to have a "consultation  with a surgeon" (?) on WEDNESDAY, and to do my "cleanout" tomorrow. Cleanout? Oh yes, for the colonoscopy. (But nobody told me I had to -) Which  was on Wednesday, the day after tomorrow - two days, what, what?  - followed by "the surgery". I was completely unable to take any of this in, because it was said by a receptionist who talked very very  fast and was obviously at the end of her shift. When I began to ask desperate questions, the putdown vocal tone and "calm down now!" attitude immediately kicked in. Only when I asked her for clarification did she email me colonoscopy "prep" notes, but nothing more, except a  time and place.

The prep is better not talked about, not something for family viewing anyway, but it left me in a lot of pain in a very vulnerable area. In the hospital I was "prepped" for the procedure by a mechanically cheery nurse whom I heard say the exact same things to patients on the other side of the hospital curtain. The "surgeon", whom I had never met in my life before and whom I could not see because they had taken my glasses away, rattled on about "if I can do the procedure" (If?. . .  Procedure?), then I was pushed into the next room. I was hooked up to an IV, so I assumed it would  be like the last time I had one of these: I'd lie on my side, they'd turn on the juice, and it would be "bye-bye- land" until it was done.

Except.

There was none. 

No. None. NO ANAESTHETIC for the colonoscopy - I was awake and conscious for the entire 45-minute thing, which was like being  assaulted by a roto-rooter. At one point I began screaming - the pain was approaching the level of childbirth as the probe with the camera on the end punched and twisted and jabbed at the turns and folds inside my colon, and the nurse kept on telling me to keep quiet because I was disturbing the other patients. I asked why I was awake,  and I was told, in  a slightly indulgent, sighing tone, "Dr. So-and-so doubled the dose of pain medication," no doubt a ploy to get me to subside because I was making too much of a fuss. In other words, if you've had all that pain medication, you can't have any pain, so what are you complaining about?  But I was awake, and in extreme pain, and no one would explain anything to me as to WHY this needed to happen.  Nor was there any sense of apology for hurting me. Getting someone to listen was impossible.

After the "procedure", everyone rapidly exited the room and left me completely alone. No one asked me how I was doing (horrible) or if it still hurt (which it did, a lot, though today it is MUCH worse and at least a 7 or 8 out of 10). Nobody said anything at all because there was no one there. They just left, with no explanation of anything they had done, or why. Then my husband took me home. I was too dazed even to cry, although I don't remember feeling  this deeply violated in many, many years.

When my husband recently had his prostate surgery, he was treated like a king. His urologist spent 45 minutes with him carefully explaining what they were going to be doing (and he had several weeks of lead  time  to prepare himself emotionally). He was given a FIFTY-PAGE document to read outlining the procedure, including every conceivable outcome from best to worst, so he wouldn't have to face any surprises. The feeling was that "men feel awfully vulnerable about things like this, it's their manhood after all, so they need lots of reassurance," which he got - in spades, from the family as well as the medical support team.

After the surgery, he spent the night in a quiet, beautiful room that even had a restful view. I remember him telling me the food was great. When he got home the next day, the entire family pitched in to help, and there were many solicitous emails flying  back and forth - and they are STILL constantly asking him how he is, weeks later, though his recovery was textbook, he experienced no pain at all (he was given an epidural, which means he felt nothing below the waist), and is back to normal now. While I can't sit down because of the inflamed, toothachey sensation in my unmentionable parts, and keep getting waves of uncontrollable, deep shuddering that I know is the awakening of a very old trauma.

I am an older woman, I have had  psychiatric and addiction problems in the past, and I was deeply violated, including sexually violated, in the hospital system over and over again, but whenever I express the view that the medical community treats me with dismissal or even contempt because of that bottom-of-the-barrel status, I am met with eye-rolls, sighs and shaking heads (followed by walking away). How on earth could I even THINK this would affect the professionalism of the medical community, which is always completely impartial and  treats everyone with equal respect?

One doctor I had seen for fifteen years insisted that the medical community had nothing to do with my perception of mistreatment and that I "stigmatize myself". Doctors "would never" do anything so harmful to anyone, and "people like me" are never treated any differently, they're really quite tolerant of those kinds of things, so I had better "work on my attitude".

Apparently, nothing can or will be done about this, because in their minds,  nothing happened.  It's done, and I am in extreme pain. I can't talk about it either, it's too embarrassing and no one is interested, and even writing this now is a risk. I don't feel good about it, but I ask myself why I even write, if I must censor myself so carefully about things that affect me so profoundly. 

I know that nerve damage, which is what this feels like, may well be permanent. Doing a colonoscopy without anaesthetic means the body is tense, the muscles are tight, and the pain made me involuntarily thrash, though I could  vaguely see (without my glasses) two figures holding me down, one on either side, while she "did it". I could NOT "just hold still, it'll be over in a minute", said to me in exasperated  "we've got another one" end-of-shift tones. The best image I could conjure up was of a bad dog at the vet.

I was only to find out later that there was also a surgical procedure done, surgery without anaesthetic, because it was easier for her to do this (and FASTER - I think the main thing was that she could get out of there quickly) while I was fully conscious. I kept thinking of the dentist's scene in The Boys from Brazil, and I keep wondering - some dark, hidden, wounded part of me keeps wondering - why? Well, why did ANY of it happen anyway, my past which apparently cemented me into  a marginalized, silenced, powerless category from which there is no escape except death?

And why the sighing, the eye-rolling, the "we've got another one" attitude when I screamed out in pain? I don't remember pain like  that, ever, except perhaps in childbirth, or being sexually  assaulted over and over which also happened - but we don't write  about that, do we, or  express it, you must just keep it to yourself because it's "not nice", it's "nasty", I'm meant to deal with it like a mature person on my own, and besides, it "probably didn't happen anyway".

But this did.

This. Did.

I hate doctors, and I don't want to go (take two)

The title sums it all up. I hate doctors. When have they done anything good for me? Every time I go, it turns out to be "nothing".

So should I conclude that it will always be "nothing"? The "it hasn't happened up to now, so it won't happen in the future" philosophy sucks rocks because it's illogical. It simply isn't true.

I am at the age - God, I hate that word - where I maybe need to worry. This is the time people are told to have screening tests like colonoscopies (which I always call colostomies by mistake - I freaked out a friend once by telling her I was supposed to have one) which scare me half to death because I've been told they can be agonizingly painful. One health forum had a comment from someone who said she would take her chances with serious disease rather than go through that again.

My husband collapsed on the floor about a year ago, and paramedics and police rushed over. Made me wonder why everyone ignores me when I have a medical problem, but then, he's male and considerably older than me. It might be heart disease, after all (because we all know women don't have heart attacks!). In the hospital they put him through a meat grinder, doing every possible diagnostic test on him. The follow-up was even more rigorous, cardiac, neurological, urological, bowel and guts and everything else they could ream out.

The result was exactly nothing.

So I don't want to go to the doctor. I don't want to go to the doctor because I've had some symptoms lately that are probably nothing, but at the same time scare the hell out of me.

It's funny, because Bill and I have talked about how we can't afford to live as long as our parents did (all four them were well over 90). In fact, we may have trouble affording our 70s. We've joked that if we make it to 80, we'll kill each other, kind of like a duel where we both shoot at once. But what if he misses, and I don't? Will I be charged with murder, or merely self-defense?

It doesn't sound good.

I think about cancer, everyone does, or do they? I don't know, I don't interview everyone in the world, or on the street. The thing is, people with cancer are usually seen as heroes, brave souls who keep smiling no matter how much it hurts. In contrast, don't ever get a psychiatric problem, for no one will visit you in the hospital with flowers and balloons. They will not. Talk about being left alone, but that is what happens. At a time when you are at your most vulnerable and in need of comfort, people shrink back in dread. They don't even talk about it except in whispers. This is not an idle statement, but based on some 50 years' experience. But I am doubted there, too. How can I even think that people could be so callous?

But cancer, now! There's a great opportunity for bravery, for heroism, for stoicism in the face of pain, and lots and lots of warm get-well wishes. Flowers, candy, visitors to perk you up, tons of Facebook encouragement, and So Much More.

Do I sound just a little bit cynical? I have my reasons.

I don't think I have cancer. So why go? I have this niggling worry. Shouldn't I just ignore it? I have had alarming symptoms for EIGHT years, with no relief because I've been told "we can't find anything" and "there's nothing we can do". Do I want to be called a hypochondriac? But how can you be a hypochondriac if you hate doctors and stay away for years at a time?

There is something cold and frightening about the medical assembly line, the way you come out the other end feeling like dressed meat ready for the oven. There is a "NEXT!" feeling that only seems to get worse over the years. They literally call it "processing patients", and see nothing untoward about it. Too many patients, not enough time, because the equipment is absurdly expensive, the tests take forever and suck up resources, and it's usually for nothing. 

But we are stuck with it. In the past, if you had cancer, you just died. Probably horribly, because there wasn't even a good way to manage pain. Unlike today, when it's the banner illness that has spawned a million fundraising walks in every color of the rainbow, it was heavily stigmatized: people didn't even say the name. Probably this was fear, a dread that "something" had taken you over, colonized your body and was eating away at you beyond your control. This "something" would suck out the marrow from your bones, cause you to waste away to a skeleton, and probably drive away all but the most loyal family members who probably prayed that it would all be over soon.

All kinds of stuff has been written about illness, its social and emotional significance, etc. Usually the sufferer is blamed for not having it all together emotionally, for having "unresolved issues" (as if everyone doesn't have those). I wonder now if it isn't just bloody bad luck. Have you noticed how unevenly luck and blessings are distributed in life? Ain't it a bitch, and don't you wish it was different? People still get sick and die, in spite of all that fancy equipment. I've had five friends die in the last few years, and three of them were only in their mid-50s. One who was exactly my age at the time pulled his truck over, opened the door, and fell to the ground dead. Perhaps his fate was better than the woman who battled breast cancer for years, or Glen, one of the most beautiful men I have ever known, who escaped from a psych ward, swallowed a bottle of pills, and was found frozen to death beside the railroad tracks.

Oh, and that's another thing: the war imagery we use, especially for cancer. She "battled" breast cancer, she "waged a valiant struggle", and sometimes she "triumphed" or scored a "victory" over it. I wonder why we do this. No one questions it, and when no one questions something I just get furious because we are PEOPLE, not cattle! My feeling has always been that you should question everything, especially loony social trends. The war imagery not only renders the sufferer especially valuable for being a "good soldier" (and we still think the military is special, no matter what anyone says), it places the whole thing at a safe, fictionalized distance, as if we're watching a World War II movie on TV or going to the Cenotaph for 45 minutes to watch old men stand in the rain.

Ah, the stoicism, the smiling in the face of doom. I wonder why people feel they have to do this, why it has become such a cultural imperative. If I had cancer, I think I'd raise bloody hell and be so hard to get along with, NO ONE would come visit me (a situation I should be used to by now). Then again, maybe I'd be terrified. I know I would not be stoical. I'd be shit-scared and probably miserable from all the clinical attention, the being fed through machines with no one talking to you.

I've heard it said that quite often, when you get your diagnosis, the doctor comes in the room, says to the patient "you have cancer", then turns and leaves you sitting there alone. If I don't go, I won't hear that, will I? These guys are sons-of-bitches, aren't they? Are there any good ones? Well, OK, my brother-in-law, he's a Gunning man and as far as I'm concerned they're all great, but he lives all the way across the country.

If I don't go, I don't need to hear any of that shit. But if I don't go, this little scritchy-scrabbly feeling in my gut may not stop for a long time. If ever.

It's my colon, and I'll write if I want to

I wasn’t going to write about this, I swear I wasn’t. NOTHING is more boring or more elderly than someone writing about an operation or a medical procedure.

But it’s Friday and I'm a little short of ideas, so. . . 

There wasn’t a lot of evidence I had anything wrong with my colon, except vague symptoms. I don’t even want to call them symptoms, because that word implies there is some sort of evidence of disease, and how do we know we have the disease if we haven't had the tests yet?

It’s something proven backwards, like menopause. “When did you go through menopause?” a (younger) friend of mine recently asked me.

“Uh. . . “

I had no idea what to say. What exactly does it mean to “go through menopause”, since “menopause” is so vaguely defined?

You can only conclude that your menses have permanently ceased if you have had no menstrual periods for one year. Does that mean you are “going through menopause” during that year? Or has menopause already ceased  (since, whether you know it nor not, you're done with periods forever)?  

How do you know, anyway? They could start again at any moment. Or not. 

And what about the five to ten years of turbulence before that permanent cessation that marks the “end” of menopause, or at least of your fertile years? (And by the way, a woman my age is always described as “menopausal”, no matter how many years have elapsed since that elusive "last" period). What about the hot flashes, the mood surges, the rollercoaster of missed and erratic periods, the the the -

I'm a little off-topic here. I am now well past all that, but now new “symptoms” (or thingamabobs, things that bother me at least a little bit) are emerging. Things that seem to be happening in my belly, or should I say lower down, in my gut.

Isn’t that kind of where we all live? I’ve heard there is more serotonin in your gut than in your brain. I have also heard the theory that there is a second brain in the gut, a sensor or reactive network of nerve endings that is so responsive, it practically has the capacity to think.

Does it also make decisions? Such as: "OK, your time is up"?

I’ve also heard all the theories about unresolved this and unrequited that. I suppose it’s got credence. My life, at least professionally,  has pretty much been an exercise in frustration. Though I know I have talent as a writer, I have had barely any recognition, and no money. This is not supposed to matter, by the way, because I am an “artist” who doesn’t need such things. And wanting it is crass and egotistical.

Meantime, every other talented person I know in every other field is accomplishing rings around me, and making good money, and I’m not supposed to mind!

I suppose this might cause some turmoil somewhere, in my brain at least, but in my gut? Maybe.

Some call this “the revenge of the unlived life”. I have never been able to place my work with anyone/anywhere where it can fulfill its potential, or what I think is its potential.  I doubt if I have enough time left to do so. It’s not a question of “gee, I want to be a writer” or writing one chapter of something and ditching it, or getting one rejection (boohoo into my pillow, get drunk, and quit). I'm not a chipper, folks. I'm serious, and I have been for my whole life.

What this has to do with getting a camera shoved up my bunghole is mysterious, but it might relate somehow. Or not. It fascinated and repelled me, the idea of this sewer snake, this Roto Rooter exploring all those twists and turns inside me. But I had become frightened by possibilities that I did not want to think about, and I was surprisingly willing to have the "procedure" done, if only to allay my anxiety.

A close friend of mine shed some light on all this. “Cancer is so out there now,” she said. “It used to be in the closet, and nobody ever mentioned it. Now it has jumped out like a jack-in-the-box and is in our faces every minute." Not only that. . . since there’s money in it, it’s being exploited – no, people’s fears are being exploited right, left and centre. Cancer has become an industry. 

Just this morning, my husband’s favourite magazine, Consumer Reports, arrived in the mail, with a cover story called “8 Cancer Tests You Don’t Need”. It was quite a revelation and reflected the fact that the medical community performs diagnostic tests on patients, not because they need to or the patients need them, but just because they can.

They have all this expensive equipment, for God’s sake, so how can they let it gather dust in the corner? So people are terrified into thinking they have cancer just because the technician (never a doctor) performs a test on them which is meant to screen for cancer.

Like “going through menopause”, it’s a backwards sort of thing. You’re having a “cancer test”; therefore you either have cancer, or MIGHT have cancer and should be worried, if not terrified, that you do.

Anyway, the hardest part of the procedure was the prep, which I’ve already written about in another post.  Fasting has never been my thing, and I don’t remember ever feeling that hollow. I won't write about the dreaded Pico Salax, which I kept calling Pico Iyer in my mind, though they don't look much alike, do they?

The day of the procedure was sort of dreamlike. I found, to my surprise, that I wasn't nervous, or not particularly. Like a dog at the vet's, I had relaxed into the inevitable. The hospital had been torn to pieces for some unknown reason, the inevitable turmoil that afflicts airports and other such public facilities so that you can never get anywhere on time. Then there was the massive water leak that had flooded the emergency ward a few days before, and was threatening to start up again.

For all that, I got there early (husband in tow: I was not allowed to leave the place without an escort to carry me in case I fainted from an anaesthetic hangover), and they let me go in right away. “In” meaning another snaking tunnel of corridors and “little rooms” with big machines in them. People came and went, either nurses or technicians, but none of them doctors. Doctors don’t belong in a hospital any more.

I was asked to take everything off except my shoes and socks, which seemed very odd, and put two gowns on, fore and aft. This was much better than the old idea of one gown which was open all down the back, a ludicrous and completely avoidable policy that was in place for 50. . . oh, skip it.

I was expecting a long wait, the “hospital wait” that seems to put you into another sort of time zone, but pleasantly enough, it didn’t happen: very soon, people started bustling around me and doing things. I sat next to a friendly elderly woman with a European accent (we were in a sort of waiting area for some reason, perhaps because the “little room” was flooded) and chatted about this and that while the nurse (technician?) draped a warm blanket over my arm. Pleasant, though I had no idea why it was there. Then she came back and said, “I’m putting the IV in now."

IV?! Oh God. Sqeam, went my guts, squeam. I remembered all the times that technicians couldn’t get blood out of me and sometimes became almost hysterical, blaming me for having “difficult veins”. So what would happen with something this intrusive, this horse needle? 

“Do you faint when you have blood taken?” 

“No.” I lied; it had happened once when I was pregnant a million years ago and they couldn’t find a vein.

She began to work on the back of my hand, which worried me even more. I didn't watch, as I never do: I don't see why I should. Strangely, after the usual one-second jab, there was no pain at all. Another nurse (technician?), who seemed to be just sitting around with a clipboard, said something like, “Good one!”, so I felt better. I also felt something running down my hand. “Oops, better wipe this up in case a patient sees it.”

Ye gods.

While all this happened, the lady with the European accent told me that she had a very low threshold for pain. I had the impression she had been ill for a long time. Her husband, who was French, sat across from her, looking much more nervous than she was and biting his nails.

Then it was time to go clomping into the room with the weird machine in it.

I lay back on a bed which seemed to be constructed of chrome bars. There followed a surreal few minutes in which I felt like Whitley Streiber in that Alien novel: several people were swarming busily around me, putting an oxygen thingie in my nose, sticky things for a heart monitor (heart monitor? For a colonoscopy??) on my chest, putting a blood pressure cuff on my arm and connecting my hand to the tube-thingammy for the anaesthetic. I felt a weird, cold, creeping sensation on the back of my hand.

Speaking of Whitley Streiber, they wasted no time on the “probe” which quickly went to its mark. The first few minutes were not pleasant at all, and the hard, almost violent pokes made me jump and even yelp a bit. “Breathe”, the technician (nurse?) said.

I breathed. After a while I sort of lost track, went into a dreamy state. This is not total anaesthesia, but a sort of twilight state in which you can still answer questions (“Is God real?”), but can’t just jump up off the table and leave. It seemed that only about five minutes had elapsed before I heard a “There,” and was “unplugged” swiftly in all five places with no pain at all.

Those aliens really know their stuff.

Then I was wheeled out of that little room into a sort of curtained-off place (which is what hospitals are now reduced to: not long ago the media discovered that Vancouver General Hospital was placing beds full of emergency patients in a doughnut shop adjacent to the hallway). It was nice, nice. I was just lying there, thinking, it’s over, then someone put Bill in a little curtain-y place beside me (he had stayed out in Reception, thinking he wasn’t wanted, which he wasn’t until I needed to go home). He said hi, then went back to where he was supposed to go.

I just lay there thinking, it’s nice.

Then I guessed I had to walk, and it was strange because all that up-and-downstairs, across parking lots, more up-and-downstairs, muddy roads, etc. etc. which I had dreaded on the way back didn’t bother me one bit because I was two  feet off the ground trailing vapor like the Ghost of Christmas Past.

So that was it, pretty much straightforward, assembly-line medicine, and I was very glad to be told (before I left!) that they hadn’t found a thing that was out of the ordinary. All clear. My guts were clean as a whistle.

But there is another part to this story that I sort of remembered retroactively. While I recovered in the little curtain-y place, I heard moans and cries. Then I realized the elderly lady with the European accent was having her colonoscopy in the same room that I had just come out of.  I now understood why her husband had been chewing his nails. The cries went on and on. At one point a nurse (?) went in there, and I heard her say, “Instead of screaming, breathe.” And that was the last I heard of her.

Total abstinence: I won't last a day without food

I can’t remember the last time I went a whole day without eating.

I used to go on extreme diets, but that was a long time ago. When I look at pictures of how thin I was BEFORE the diet, I plotz. In some photos I look like a ghost: it was at that point that I felt I was “thin enough”, at least until I put back 5 pounds or so.

I have had an uneasy relationship with food, with eating.  Whole industries have sprung up around it, billions of dollars’ worth. Buying food, preparing food, eating in restaurants so we won’t have to put out any effort at all.

I remember feeling a little shocked when a friend of mine (quite obese, and apparently going to a nutritionist because she said she had no interest in food ) said to me, after we’d finished eating in a restaurant, “So what's so great about it? It’s in one end and out the other.”

Well, it’s true, but we don’t think about that, do we?

Why make such a fuss about food? Everything turns to shit anyway. Kind of like a metaphor for life.

I’m thinking about all this, as I sit here already feeling hollow and groany in the stomach. I’ve been doing “prep” for a colonoscopy for several days now, first with a restricted diet (no this, no that), and today with a liquid diet restricted to anything I can see through.

Meaning limited Jell-o, limited chicken broth (these consumed as “meals”), ginger ale, apple juice, and water and water and water. And water.

Already I am feeling unmoored. For food isn’t just something that keeps us going, as in "calories in". It’s a way of marking the day, of orientation. “Haven’t you had lunch yet?” “You mean you don’t eat breakfast? It’s the most important meal of the day.” (Why?) “Let’s have dinner some time.” Etc. Not “let’s get together and talk trash", but “let’s get together and stuff food into our mouths”.

I won’t write about the obesity crisis which seems to be blowing people up like balloons. My theory (one that I have never seen anywhere else) is that people are responding to the emotional stress of a harrowing, violent, climate-damaged world by stuffing things in their mouths. They’ve been doing it since they were babies.

It’s self-comforting, and the thing is, when you walk into the average store, I mean a drug store or department store like Walmart or Target or one of those, one of the first things you see is a WALL of junk Sometimes walls and walls of it. None of it is really edible and most of it consists of sugar, fat and other empty calories. All of it is within easy reach and does not cost very much.

Ladies and gentlemen, here’s your pacifier! Come stuff it in your mouth, and a few hours later, shit it out in your diaper. Or wherever.

But I set out to write about this strange fast, this abstinence, fortunately only one-and-a-half days long. Later this day I must purge, and I’ve heard this stuff is a Roto-Rooter to your insides. It scares me half to death  because the whole reason I am having this procedure is that I’ve been having abdominal pains. Might they be made infinitely worse by this liquid Draino I have to drink tonight?

I am not one of these people who wants to “watch”, by the way. I don’t know why they let anyone watch the procedure. The whole reason it’s done is to screen for cancer, tumors and other abnormalities of the colon. Who wants to be lying there staring at the screen and suddenly hear the technician say, “Oh my God, that’s the worst one I’ve ever seen"?

It’s seven minutes after eleven, and all I’ve had today is coffee (black) and water (clear). I thank the Lord I can have coffee at least. When I have my fasting glucose test every few months, coffee is not allowed, and by the time my arm is stuck and bled, my head is pounding. After the siphoning I run for Starbuck’s or, even better, McDonald’s, which has surprisingly good coffee that is just loaded with caffeine.

As I sit here listening to my stomach make noises like a grizzly, my mind bounces back and forth. I’ve been doing this for weeks now, but it has intensified over the past few days. Of course everything will be all right. I’ve “passed” every medical test I have ever had. Nothing is ever wrong. EVER.

Then why am I having this?

There’s no cancer in my family. Anywhere. But that turned out to be a lie, or a “mis-truth”, a form of selective amnesia. My Dad was indeed treated for bladder cancer and completely cured and went on to live another 30 years. My mother had her uterus removed, but no one ever told me why (and in fact I did not find out she had a hysterectomy until many years later. At the time, she was just “in the hospital”.)

So it is quite possible that BOTH my parents had cancer. A strange sort of flip-flop from what I believed until quite recently. I wasn’t lying to myself. I just didn’t “know”, though in fact I knew very well. I was protecting myself from the truth.

So how do I feel without the anchoring effect of food, the three meals a day that prevents everything from blurring together into “blunch”, “linner” and “dupper”? I find I’m already forgetting and almost grabbing something to eat. Just a banana. (God, I had a lot of bananas yesterday.) I am holding off on my feast of peach Jell-o and Knorr chicken broth (“Made from real chicken!” Hell’s bells, what ELSE would it be made from?) until I am truly desperate.

I don’t want this “procedure” to happen, but at the same time I want it over with. I know the most likely result: no phone call, which is good news, isn’t it? Better than the other kind.

I can’t help but remember, though, all the friends I used to have, the ones who fell to disease: cancer, heart attack, AIDS, more cancer. . . Oddly enough, the one that bothered me most was the recent death of someone I could only call an acquaintance. I had not seen her for years – she was once a member of my former church and had just been ordained as a minister – and then suddenly I’m getting a Facebook message inviting me to her memorial service.

MEMORIAL SERVICE?

When you leave a place you’ve been part of for years, it sort of freezes in time. If you meet someone you knew years later, you can’t help but think, God, they look old. But when someone dies at 50. . .  Someone you admired, liked, even though you weren’t really friends. Someone whom you knew would make an outstanding minister because of her soaring spirit and vibrant faith.

And now she’s dead. Dead?

I am still having trouble getting my head around it, don’t really believe it, can’t associate her with death at all. And it was cancer, that looming shadow, perhaps the main thing we are trying to rule out tomorrow, which is why I have to be so cleaned out. If she could die like that, just vanish, so that I’ll never see her again. . .

I can’t finish that sentence.

This is just a procedure. Millions of people have it. I haven’t had any real symptoms. At least, I don’t think they are symptoms. I don’t know what they are, just things that have been bothering me. I only know I am not allowed to eat, and the peach Jell-o quivering in the fridge is beginning to look like coq au vin.

Not eating, fasting, is like missing a step in a dance or a skipping rhythm. Or maybe stepping back from everything. It feels weird, hollow. It leaves you clutching at the air. And oddly depressed, your pacifier snatched out of your mouth, so that you are forced to see, and feel, all the things that you would really rather not.

I hate the doctor, and I don't want to go

The title sums it all up. I hate doctors. When have they done anything good for me? Every time I go, it turns out to be "nothing".

So should I conclude that it will always be "nothing"? The "it hasn't happened up to now, so it won't happen in the future" philosophy sucks rocks because it's illogical. It simply isn't true.

I am at the age - God, I hate that word - where I maybe need to worry. This is the time people are told to have screening tests like colonoscopies (which I always call colostomies by mistake - I freaked out a friend once by telling her I was supposed to have one) which scare me half to death because I've been told they can be agonizingly painful. One health forum had a comment from someone who said she would take her chances with serious disease rather than go through that again.

My husband collapsed on the floor about a year ago, and paramedics and police rushed over. Made me wonder why everyone ignores me when I have a medical problem, but then, he's male and considerably older than me. It might be heart disease, after all (because we all know women don't have heart attacks!). In the hospital they put him through a meat grinder, doing every possible diagnostic test on him. The follow-up was even more rigorous, cardiac, neurological, urological, bowel and guts and everything else they could ream out.

The result was exactly nothing.

So I don't want to go to the doctor. I don't want to go to the doctor because I've had some symptoms lately that are probably nothing, but at the same time scare the hell out of me.

It's funny, because Bill and I have talked about how we can't afford to live as long as our parents did (all four them were well over 90). In fact, we may have trouble affording our 70s. We've joked that if we make it to 80, we'll kill each other, kind of like a duel where we both shoot at once. But what if he misses, and I don't? Will I be charged with murder, or merely self-defense?

It doesn't sound good.

I think about cancer, everyone does, or do they? I don't know, I don't interview everyone in the world, or on the street. The thing is, people with cancer are usually seen as heroes, brave souls who keep smiling no matter how much it hurts. In contrast, don't ever get a psychiatric problem or you will be more or less seen as a fuckup. No one will visit you in the hospital with flowers and balloons because it's your own freaking fault you're there. Their ancient, deeply-buried dread of demonic possession will keep them away. But cancer, now! There's a great opportunity for bravery, for heroism, for stoicism in the face of pain, and lots and lots of warm get-well wishes.

Do I sound just a little bit cynical? I have my reasons.

I don't think I have cancer. So why go? I have this niggling worry. Shouldn't I ignore it? Do I want to be called a hypochondriac? But how can you be a hypochondriac if you hate doctors and stay away for years at a time?

There is something cold and frightening about the medical assembly line, the way you come out the other end feeling like dressed meat ready for the oven. There is a "NEXT!" feeling that only seems to get worse over the years. Too many patients, not enough time, because the equipment is absurdly expensive, the tests take forever and suck up resources, and it's usually for nothing. After all, somebody important might come in.

But we are stuck with it. In the past, if you had cancer, you just died. Probably horribly, because there wasn't even a good way to manage pain. Unlike today, when it's the banner illness that has spawned a million fundraising walks in every color of the rainbow, it was heavily stigmatized: people didn't even say the name. Probably this was fear, a dread that "something" had taken you over, colonized your body and was eating away at you beyond your control. This "something" would suck out the marrow from your bones, cause you to waste away to a skeleton, and probably drive away all but the most loyal family members who probably prayed that it would all be over soon.

All kinds of stuff has been written about illness, its social and emotional significance, etc. Usually the sufferer is blamed for not having it all together emotionally, for having "unresolved issues" (as if everyone doesn't have those). I wonder now if it isn't just bloody bad luck. Have you noticed how unevenly luck and blessings are distributed in life? Ain't it a bitch, and don't you wish it was different? People still get sick and die, in spite of all that fancy equipment. I've had five friends die in the last few years, and three of them were only in their mid-50s. One who was exactly my age at the time pulled his truck over, opened the door, and fell to the ground dead. Perhaps his fate was better than the woman who battled breast cancer for years, or Glen, one of the most beautiful men I have ever known, who escaped from a psych ward, swallowed a bottle of pills, and was found frozen to death beside the railroad tracks.

Oh, and that's another thing: the war imagery we use, especially for cancer. She "battled" breast cancer, she "waged a valiant struggle", and sometimes she "triumped" or scored a "victory" over it. I wonder why we do this. No one questions it, and when no one questions something I just get furious because we are PEOPLE, not cattle! My feeling has always been that you should question everything, especially loony social trends. The war imagery not only renders the sufferer especially valuable for being a "good soldier" (and we still think the military is special, no matter what anyone says), it places the whole thing at a safe, fictionalized distance, as if we're watching a World War II movie on TV or going to the Cenotaph for 45 minutes to watch old men stand in the rain.

Ah, the stoicism, the smiling in the face of doom. I wonder why people feel they have to do this, why it has become such a cultural imperative. If I had cancer, I think I'd raise bloody hell and be so hard to get along with, NO ONE would come visit me (a situation I should be used to by now). Then again, maybe I'd be terrified. I know I would not be stoical. I'd be shit-scared and probably miserable from all the clinical attention, the being fed through machines with no one talking to you.

I've heard it said that quite often, when you get your diagnosis, the doctor comes in the room, says to the patient "you have cancer", then turns and leaves. If I don't go, I won't hear that, will I? These guys are sons-of-bitches, aren't they? Are there any good ones? Well, OK, my brother-in-law, he's a Gunning man and as far as I'm concerned they're all great, but he lives all the way across the country.

If I don't go, I don't need to hear any of that shit. But if I don't go, this little scritchy-scrabbly feeling in my gut may not stop for a long time. If ever.