Showing posts with label stigma. Show all posts
Showing posts with label stigma. Show all posts

Wednesday, January 27, 2016

Let's Talk: today and every day





Every day, and in every way, I am hearing a message. And it's not a bad message, in and of itself. 

It's building, in fact, in intensity and clarity, and in some ways I like to hear it.

It's about mental illness, a state I've always thought is mis-named: yes, I guess it's "mental" (though not in the same class as the epithet, "You're totally mental"), but when you call it mental illness, it's forever and always associated with and even attached to a state of illness. You're either ill or you're well; they're mutually exclusive, aren't they?




So the name itself is problematic to me. It seems to nail people into their condition. Worse than that, nobody even notices. "Mentally ill" is definitely preferable to "psycho", "nut case", "fucking lunatic", and the list goes on (and on, and on, as if it doesn't really matter what we call them). But it's still inadequate.

There's something else going on that people think is totally positive, even wonderful, showing that they're truly "tolerant" even of people who seem to dwell on the bottom rung of society. Everywhere I look, there are signs saying, "Let's reduce the stigma about mental illness."

Note they say "reduce", not banish. It's as if society realizes that getting rid of it is just beyond the realm of possibility. Let's not hope for miracles, let's settle for feeling a bit better about ourselves for not calling them awful names and excluding them from everything.





I hate stigma. I hate it because it's an ugly word, and if you juxtapose it with any other word, it makes that word ugly too. "Let's reduce the hopelessness" might be more honest. "Let's reduce the ostracism, the hostility, the contempt." "Stigma" isn't used very much any more, in fact I can't think of any other group of people it is so consistently attached to. Even awful conditions (supposedly) like alcoholism and drug abuse aren't "stigmatized" any more. Being gay isn't either. Why? Compassion and understanding are beginning to dissolve the ugly term, detach it and throw it away. 





"Let's reduce the stigma" doesn't help because it's miserable. It's the old "you don't look fat" thing (hey, who said I looked fat? Who brought the subject up?). Much could be gained by pulling the plug on this intractibly negative term. Reducing the stigma is spiritually stingy and only calls attention to the stigma.  

So what's the opposite of "stigmatized"?  Accepted, welcomed, fully employed, creative, productive, loved? Would it be such a stretch to focus our energies on these things, replacing the 'poor soul" attitude that prevails?





But so far, the stifling box of stigma remains, perhaps somewhat better than hatred or fear, but not much. Twenty years ago, a term used to appear on TV, in newspapers, everywhere, and it made me furious: "cancer victim". Anyone who had cancer was a victim, not just people who had "lost the battle" (and for some reason, we always resort to military terms to describe the course of the illness). It was standard, neutral, just a way to describe things, but then something happened, the tide turned, and energy began to flow the other way.

From something that was inevitably bound to stigma in the past, cancer came out of the closet in a big way, leading to all sorts of positive change that is still being felt. But first we had to lose terms like "victim", because they were unconsciously influencing people's attitudes. We had to begin to substitute words like "survivor" and even "warrior". 





One reinforced the other. The movement gave rise to much more positive, life-affirming, even accurate terminology. That's exactly what needs to happen here. We don't just need to "reduce the stigma": we need to CAN that term, spit on it, get rid of it once and for all, and begin to see our mental health warriors for who and what they really are. They lead the way in a daring revolution of attitudes and deeply-buried, primitive ideas, a shakeup and shakedown of prejudice that is shockingly late, and desperately needed.





Why do we need to do this so badly? We're caught and hung up on a negative, limiting word that is only keeping the culture in the dark.  I once read something in a memoir that had a profound effect on me: "Mental illness is an exaggeration of the human condition." This isn't a separate species. Don't treat it as such. It's you, times ten. It's me, in a magnifying mirror. Such projections of humanity at its finest and most problematic might just teach us something truly valuable. Why don't we want to look?








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Thursday, December 17, 2015

Riverview: you mean it's for mental health?


Riverview Lands revisioning to include new mental health buildings

Three programs will be relocated to two new buildings under a revisioning plan for the lands

CBC News Posted: Dec 17, 2015 2:26 PM PT Last Updated: Dec 17, 2015 2:26 PM PT



Fraser Health currently operates three mental health facilities on the Riverview Lands. (CBC)

Related Stories

Riverview Hospital: Dr. Gulzar Cheema applauds new program
Riverview Hospital to get 40 new beds for addiction rehabilitation
Riverview Hospital: a brief history
Future of Riverview Hospital determined in open houses


The B.C. government says it plans to build two new buildings on the Riverview Lands in Coquitlam and relocate three mental health programs to the site, as part of its redevelopment.

The new facilities are part of a master plan released Thursday morning by B.C. Housing that will eventually include new market and social housing on the site.

Entitled A Vision for Renewing Riverview Lands, the report is the first step in developing a master development plan that will include a healthcare district as well as market and supportive housing.

The overall aim of the project is to redevelop the site on a break-even model, meaning that the construction or renovation of new healthcare facilities would be funded by commercial development of the land, mostly for housing.




The commitment includes spending approximately $175 million to build a 105-bed mental health facility to replace the Burnaby Centre for Mental Health and Addiction, and a second new building to house the 28-bed Maples Adolescent Treatment Centre and the 10-bed Provincial Assessment Centre.

The Kwikwetlen First Nation has maintained its aboriginal right and title to the land. In a statement, the band said it expects to see significant market development of the land, including for market housing and it objected to any continued use or expansion of healthcare facilities without its prior consent.
100 years of mental health care

The Riverview Lands have been the site of B.C.'s primary mental health facilities for about 100 years when the Colony Farm was established.

But in the 1980s, the Social Credit government came up with a plan to close Riverview and attempt to integrate mental health patients back into communities.





Riverview Hospital was downsized over the course of a decade in favour of locating mental health services in the community, a strategy that met with mixed success. (coqutlam.ca)

While that plan met with mixed success, over the next few decades the hospital wards were shutdown and now the site has been sitting mostly empty — except for three small mental health facilitiesoperated by Fraser Health.

About 75 buildings remain on the site, but many are not longer in use and would require extensive renovations to put back into use.
Riverview Hospital: a brief history

Riverview is listed in the top ten of Canada's most endangered heritage sites by the Heritage Canada Foundation.

As a result in 2013 the government, in order to involve the stakeholders in developing a long-term plan, launched the revisioning process for the 100-hectare site, which includes extensive forests and 1,800 mature trees.




BLOGGER'S LAMENT. This is just the most bizarre thing. Riverview originally began as an old-fashioned mental hospital, the type with shackles and shock and cold water, then when psychiatry became more "enlightened" it basically dumped everyone out on the street and said, "Go!" These patients were supposed to be sustained by "resources in the community" which turned out to be non-existent. The result was an epidemic of homelessness and drug dependency.

On the plus side, the Riverview grounds became a lucrative site for the filming of horror movies and made quite a name for itself, no doubt reinforcing a few stereotypes along the way. These plans to turn Riverview BACK into a mental health facility make me either want to laugh, or cry, or both. Nor is there any admission of wrongdoing - in fact, the tone of this article is quite self-congratulatory. The most they will admit to is "mixed success" with their patient-dumping scheme, when everyone in the health care field (who has the guts to be honest) calls it an unmitigated disaster. But no: the article has the tone of "look at this wonderful thing we're doing for the mental health care community!" But I'm afraid the new buildings won't be quite creepy enough to film another Stephen King movie.




I do remember the sign that was posted outside the gloomy old grounds, Riverview's "Mission Statement": "Transforming mental illness into mental wellness." Crap. I say crap because this is the kind of assumption that actually hurts psychiatric patients. It's an assumption that everyone can be "normalized", that everyone is fully employable and capable of a productive, happy life on society's restrictive, narrow, judgemental terms. Not many schizophrenics ever reach that goal, and for a person with  bipolar disorder it's hit-or-miss.

So is this a step forward? Step in the right direction? It was not long ago there was talk that the historic Riverview grounds which everyone babbles so proudly about was going to be sold to developers for yet another mass of condos. But it didn't happen, maybe because of all those Stephen King movies, or the thought that (shudder) "mental patients" had once walked these grounds in the dead of the night.




In case you doubt me, I've written more than once about mental patient Halloween costumes complete with straitjackets, giant syringes and Hannibal Lector-style face masks. "Danger! Escaped mental patient!" is a common front-yard sign to celebrate this festive occasion. Pretty funny stuff, so long as people only have to play at it.

I watched my brother disappear into a twilight world in the 1970s, and we never really saw him again, or saw him whole. Bouts in the Clarke Institute in Toronto seemed to do more harm than good. Finally, my brilliant, charming, charismatic brother died in a fire, the result of having to squat  in an old building because he wasn't able to support himself, though he was a very gifted musician who played in professional orchestras when he was well enough.

But he wasn't well enough, most of the time. He wasn't fully employable, and he lived hand-to-mouth, sheltered in Buddhist and Sikh temples by the only people who ever showed him any compassion. He wasn't well enough because schizophrenia is a chronic illness that can be managed but not cured, and he had little or no resources to manage it.




I lost him in  1980, the year John Lennon died. I now see that the psychiatric "community", as it is euphemistically known, did him far more harm than good. They labelled him "a schizophrenic", and because identity was a difficult thing for him, he took the label on and lived within it while we all helplessly watched.

So for this, and countless other reasons, I continue to write about this subject. If you think mental illness isn't stigmatized, try having it for ONE day.  You'll either feel it from the outside, or the inside. You'll wince at straitjacket costumes and horror movies filmed on grounds that once tried to do some good, with actors in mental patient costumes running around with bloody axes.

I wonder, sometimes, if it's ever going to be any different. If I hear about this subject at all, four words are always blasted at me: REACH OUT FOR HELP.  What help - where? Do people think you can just walk into the hospital and say, "Help me"? You can't check yourself in, folks. Even your doctor can't check you in. No one can, because there are never any beds. After a four or five-hour wait, they'll likely send you home with a prescription. Kind of a waste of energy, don't you think?

The "reach out for help" mantra dumps responsibility for illness and recovery back in the patient's lap at a time when he or she can barely function. Friends and family members get burned out and often don't want yet another (complaining?) phone call in the middle of the night. Nobody thinks about that, do they? So where IS the help, if there is any?

But never mind, there is a certain agency that takes care of the overflow. I don't think I need to tell you what that is.





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Saturday, October 10, 2015

Stunning? I'd say so!





Top Psychiatrist’s Stunning Announcement About Gun Violence


By PAULA J. CAPLAN, PHD
Featured Blogs October 9, 2015

After each highly publicized gun violence incident, some lawmakers—whether with good intention, for political gain, or both—declare that we must have laws to keep guns out of the hands of people with mental illness. It is therefore stunning and profoundly important to note Sunday's blog post from the American Psychiatric Association's president, Dr. Renee Binder.

As chief executive of the major lobby group that advocates for the interests of psychiatrists, Binder might have been expected to recommend an increase in psychiatric treatment for the mentally ill as a way to reduce gun violence. Amazingly, she not only did not make that recommendation, but she made the powerful—and well-documented—statement that people diagnosed with mental illness are far more likely to be victims of violence than perpetrators of it and that most of the mentally ill will never commit acts of violence against others. Thus, to pass laws to prevent the mentally ill from owning guns is no way to reduce the frequency of murders. In fact, as Binder pointed out, "Stronger indicators of risk include a history of violent behavior, domestic violence, and drug or alcohol abuse."






Politicians on the Sunday morning news shows either failed to read Binder's essay or chose to ignore it and plowed right ahead, pushing for gun laws about the mentally ill. And on Monday morning, former Congressman Patrick Kennedy appeared on CBS, making an impassioned plea to prevent the mentally ill from owning guns and making the bold—and unfounded—assertion that that such a step would have prevented the most recent mass shooting. It will be worth watching to see if over time, Binder's strong statement alters politicians' proposals. Today, Republican Presidential candidate Ben Carson made a similar plea.

Two important points shed further light on this matter. One arises from the fact that the primary way that "the mentally ill" are identified is by having been given psychiatric diagnoses, but a vast body of work over three decades has revealed psychiatric diagnostic categories to be constructed and applied with little or no scientific support, so attempts to divide the populace into "the mentally ill" and "everyone else"—and aim to pass laws affecting the former—make no sense.






The other relevant point is that the ballooning numbers of categories and subcategories that are called mental illnesses has led to the psychiatrizing of our society, the tendency of therapists, media people, the public, even some novelists to try to explain every aspect of human behavior as caused by a mental illness. This often takes the form of, "Person X did Y, and the fact that they did Y proves that they are mentally ill, because Y (almost any action or expression) is a mental illness." Defense attorneys operating in a system that is often stacked against the accused, especially if the latter are poor or women or people of color, understandably try to get their clients diagnosed as mentally ill, hoping to argue that the psychiatric disorder is reason for a reduced sentence. As a result, a confounding factor we will increasingly need to consider is that an artificially created correlation between a diagnosis of mental illness and commission of a violent act will result, as anyone charged with an act of violence is increasingly likely to be labeled mentally ill. As that happens, it will unjustifiably become ammunition for those who want to base laws on the notion that "the mentally ill" are more dangerous than the rest of the populace.






POST-BLOG THOUGHTS. I've added a couple of things that might be relevant. Below is one of those cut-and-paste Facebook messages about depression, which are, I guess, better than nothing - but not much. They strike me as paper doll or cookie-cutter responses, don't cost anything, and can give you a false sense of having done your bit (so you can wash your hands of it all). 

These are posted for just one hour, then, I assume, taken down - but why? Why is it considered so dangerous for people to leave a post about depression on their page? Why the necessity of reassuring people with statements like "I did it for a friend and you can too" (which smacks of "well, my friend has this problem. . . )? The whole post seems to be saying, "it's OK to display a message about this completely taboo topic, because no one will ever know".





For many people, even mentioning the subject to offer "a moment of support" is just too great a risk, likely because they fear being exposed as a sympathizer. "If I don't see your name, I'll understand" is a very sad statement: I know you can't risk mentioning your name, because people might think you're "one of them". As I've said before, and I will keep on saying it, mental health issues are where gay issues were in 1970, and cancer issues in 1950. 

I have some things to say about all this (as usual). Below the Facebook quote and my response to it, I've posted a link to something you really need to see, if this subject interests you at all. (Please note: this is what you should NOT wear as a Halloween costume.)






Facebook cut-'n-paste message:

Yes depression is such a bitch and seems relentless. A lot of us have been close to that  edge, and some have lost friends and loved ones. Let's look out for each other and stop sweeping mental illness under the rug. If I don't see your name, I'll understand. May I ask my family and friends wherever you might be, to kindly copy and paste this status for one hour to give a moment of support to all those who have family problems, health struggles, job issues, worries of any kind and just need to know that someone cares. Do it for all of us, for nobody is immune. Hope to see this on the walls of all my family and friends just for moral support. I know some will!!! I did it for a friend and you can too. You have to copy and paste this one, no sharing.

My response to these one-hour-long, "if I don't see your name" messages of support: 


We're starting to see more about depression on Facebook these days, and people are pasting and sharing and doing all manner of things. But do you know what might do even more to help the cause? If you know of someone who is off work with depression, don't avoid them or pretend it isn't happening. Ask them if they're up to a visit at home or in the hospital, and go see them and bring flowers or something else they might like. Depression is disabling and hurts far worse than a heart attack or a broken bone, but there are virtually no flowers sent to psychiatric wards. People's aversion runs very deep. Let's get over it, shall we? THAT would be really helpful.

Wednesday, January 28, 2015

Let's Talk: why we need it so badly




http://www.ctvnews.ca/health/lets-talk

There's a reason I post this link today.

Though it has gotten a certain amount of coverage by the mainstream press, mostly telling lame versions of "the clown story" ("But doctor, I AM Pagliacci!"), Let's Talk (sponsored, let's not forget, by Bell) is always well down on the list, because mental health simply isn't news. The fact we're just beginning to "talk", "break the stigma", etc. (or "reduce" the stigma, as it's usually expressed) in 2015 horrifies me. The fact that we have to set aside a day for it (but only one - let's not get carried away here) is discouraging, but it's better than nothing, I suppose. But I think we still have an Amadeus-cage/snake pit/cuckoo's nest mentality, or at least scorn, contempt and mortified silence.

I don't know what I'm going to do about all this, so I'll post this excellent link to many good videos, then re-run a piece that it cost me something to write.  Will it do any good? Will anyone even see it?


Let's not "reduce" the stigma: let's throw it out!




Every day, and in every way, I am hearing a message. And it's not a bad message, in and of itself. 

It's building, in fact, in intensity and clarity, and in some ways I like to hear it.

It's about mental illness, a state I've always thought is mis-named: yes, I guess it's "mental" (though not in the same class as the epithet, "You're totally mental"), but when you call it mental illness, it's forever and always associated with and even attached to a state of illness. You're either ill or you're well; they're mutually exclusive, aren't they?




So the name itself is problematic to me. It seems to nail people into their condition. Worse than that, nobody even notices. "Mentally ill" is definitely preferable to "psycho", "nut case", "fucking lunatic", and the list goes on (and on, and on, as if it doesn't really matter what we call them). But it's still inadequate.

There's something else going on that people think is totally positive, even wonderful, showing that they're truly "tolerant" even of people who seem to dwell on the bottom rung of society. Everywhere I look, there are signs saying, "Let's reduce the stigma about mental illness."

Note they say "reduce", not banish. It's as if society realizes that getting rid of it is just beyond the realm of possibility. Let's not hope for miracles, let's settle for feeling a bit better about ourselves for not calling them awful names and excluding them from everything.





I hate stigma. I hate it because it's an ugly word, and if you juxtapose it with any other word, it makes that word ugly too. "Let's reduce the hopelessness" might be more honest. "Let's reduce the ostracism, the hostility, the contempt." "Stigma" isn't used very much any more, in fact I can't think of any other group of people it is so consistently attached to. Even awful conditions (supposedly) like alcoholism and drug abuse aren't "stigmatized" any more. Being gay isn't either. Why? Compassion and understanding are beginning to dissolve the ugly term, detach it and throw it away. 





"Let's reduce the stigma" doesn't help because it's miserable. It's the old "you don't look fat" thing (hey, who said I looked fat? Who brought the subject up?). Much could be gained by pulling the plug on this intractibly negative term. Reducing the stigma is spiritually stingy and only calls attention to the stigma.  

So what's the opposite of "stigmatized"?  Accepted, welcomed, fully employed, creative, productive, loved? Would it be such a stretch to focus our energies on these things, replacing the 'poor soul" attitude that prevails?





But so far, the stifling box of stigma remains, perhaps somewhat better than hatred or fear, but not much. Twenty years ago, a term used to appear on TV, in newspapers, everywhere, and it made me furious: "cancer victim". Anyone who had cancer was a victim, not just people who had "lost the battle" (and for some reason, we always resort to military terms to describe the course of the illness). It was standard, neutral, just a way to describe things, but then something happened, the tide turned, and energy began to flow the other way.

From something that was inevitably bound to stigma in the past, cancer came out of the closet in a big way, leading to all sorts of positive change that is still being felt. But first we had to lose terms like "victim", because they were unconsciously influencing people's attitudes. We had to begin to substitute words like "survivor" and even "warrior". 





One reinforced the other. The movement gave rise to much more positive, life-affirming, even accurate terminology. That's exactly what needs to happen here. We don't just need to "reduce the stigma": we need to CAN that term, spit on it, get rid of it once and for all, and begin to see our mental health warriors for who and what they really are. They lead the way in a daring revolution of attitudes and deeply-buried, primitive ideas, a shakeup and shakedown of prejudice that is shockingly late, and desperately needed.





Why do we need to do this so badly? We're caught and hung up on a negative, limiting word that is only keeping the culture in the dark.  I once read something in a memoir that had a profound effect on me: "Mental illness is an exaggeration of the human condition." This isn't a separate species. Don't treat it as such. It's you, times ten. It's me, in a magnifying mirror. Such projections of humanity at its finest and most problematic might just teach us something truly valuable. Why don't we want to look?




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Sunday, August 24, 2014

Stigma, stigmata: let's get rid of it, shall we?


Robin Williams and the talk of the 'stigma' of mental illness


The death of the actor has occasioned many ill-advised opinions





Elizabeth Day

The Observer, Sunday 24 August 2014
Jump to comments (195)





Flowers are placed in memory of Robin Williams on his Walk of Fame star in the Hollywood district of Los Angeles. Photograph: Kevork Djansezian/AP


When a much-loved celebrity dies in a sudden and shocking way, the immediate human desire is to find an explanation. We want to rationalise brutality. We need the reassurance. We kid ourselves that knowledge is a bulwark against falling into the same situation. If we know what caused it, the flawed reasoning goes, we can prevent it from happening again.


So it was that, in the days after Robin Williams took his life, media outlets were filled with speculation. Was it the threat of bankruptcy or career worries or a lifelong battle with addiction or a recent diagnosis of Parkinson's that made him confront the meaning of his existence?


The questions were futile. Depression is not a logical disease, a matter of straightforward cause and effect. Suicide is a devastating and complex beast. In truth, the only person capable of telling you why they did what they did has fatally absented themselves from the discussion. And sometimes, even they would be unable to pinpoint a reason.


But alongside the hopeless search for motivation, something else emerged in the aftermath of Williams's death. There was a lot of chatter surrounding the "stigma" of mental illness. Social networks were clogged with people urging others to seek help for their depression and not to feel "stigmatised" by their illness. There were magazine articles about mental health issues being "taboo" and how we must counteract this state of affairs by talking about our own struggles.


All of which is entirely admirable, but is there a stigma? The very fact that the internet was abuzz with people sharing their own stories of depression and encouraging others to do the same suggests that, thankfully, we live in a more accepting age. Most of us will know of close friends or family members who have dealt with depression. Some of us, myself included, will have experienced a form of it ourselves. Celebrities, too, have spoken out, fostering this culture of greater acceptance. The actresses Carrie Fisher and Catherine Zeta-Jones have talked about their bipolar disorders. Stephen Fry has written movingly about his depression.


As a result, I don't view mental illness as a scary, strange thing or as a form of weakness. Do you? I doubt it. And because we are talking more openly than we might have done in the past, many employers have become more attuned to dealing with it. If a workplace failed in this duty of care, there would, rightly, be outrage.


Stigma exists in other places – in the long-term care of the elderly, for instance: that unglamorous world of colostomy bags and daily drudgery we don't like to talk about because we're scared it lies ahead of us all.


There is still work to be done. An applicant for a job might feel less inclined to mention a history of mental health problems than, say, a battle with cancer. That is wrong. But bandying around the term "stigma" in reference to mental illness is unhelpful. It does precisely the opposite of what it intends to do: it means we're actually more likely to think of it in those terms because of the repeated association. Can't we just ditch the word?


What does "stigma" mean, anyway? The original definition has its roots in a Greek term that referred to the marking – by cutting or burning – of socially undesirable types such as criminals, slaves or traitors. Later, the Canadian sociologist Erving Goffman defined social stigma as "the phenomenon whereby an individual with an attribute which is deeply discredited by his/her society is rejected as a result of the attribute".


Does that apply to mental health? Increasingly, I would say the answer is no. Yes, we should keep talking about depression. Yes, we should be profoundly sensitive to those who grapple with it every day of their lives. But let's stop saying there's a stigma attached to it.


(Emphasis mine. This article echoes one of my previous posts, expressing the belief that juxtaposing the ugly, scary word "stigma" with ANY condition "marks" it in a way which reminds me of the plural of stigma - stigmata. No more bleeding wounds, eh? No more creepy supernatural manifestations, "demons" (a word people casually use to describe mental illness without ONCE stopping to think exactly what they are saying), or any of the crap that still hangs around human pain. Let's get real, use some sensible and sensitive language, and get on the path to real healing.)






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Wednesday, July 30, 2014

Oh no it couldn't be




(Two middle-aged women, overheard talking at Tim Hortons yesterday).

Oh well you know I can’t stay in the sun longer than

Well, aren’t you using sunscreen?

Isn’t it a little late for that, I mean

Oh my God, I’ll bet you were one of those people who baked in the sun.

I don’t bake in the sun any

Use sunscreen

By the way I got some news about, you know, all that trouble he's been having

Oh, tell me, what did they find?

Oh well, they didn’t exactly find anything

Whadda you mean? He went through every test that existed, didn’t he?

Yeah, and they kept not finding anything, and he was, you know, wanting to give up. And I said, I've been with you twenty years and I'm not about to give up yet.

Well, why don't you just have the tests done again? These machines, you know

Yeah, and that’s about all there is now. Machines. No real doctors.

Tell me about it. Doctors don’t do anything at all now except sit there and delegate.






Then you get to the hospital and your body is stuck in a big tube, or you have to get your insides reamed out

(giggles)

So they still don't have a clue what it is?

No, I told you! I got the news on (muffled)

News. What do you mean by news?

They think they do know what’s wrong with him.

So, what, tell me!

Depression.

(silence)

No.

Yeah, see it’s

Oh NO. No, no, no, no, no. That’s what they all say now. It's the disease of the week.

Yeah, but he -

It’s just a way of pushing those pills. Maybe it’s his adrenal glands.

But he’s been so –

Everybody gets that way. Listen, I know what will help. Turmeric.




Turmeric? Isn’t that something that goes in a pie or something?

No, no. It’s a miracle substance. I’ve seen it happen again and again.

But I’ve tried everything like that. I mean, alternative stuff. He just sits there

Get him out! Just get him out more. Talk to him. Get him to be more positive.

This isn’t a matter of will. That’s what the doctor said.

Doctor?

Psychiatrist.

PSYCHIATRIST?

They’re not witch doctors, you know.

They’re not? They’re funded by the pharmaceutical companies! You should know that. They’re nothing but pill-pushers.

But I don’t know what to do. He’s talking about killing (muffled)

(Silence)

No.

(unintelligible; sounds of weeping)

No.

But it’s true that (muffled)

No. Just get him out more. I mean, spiritually this might mean he’s trying to break out into the light.

LIGHT! He wants to jump off a bridge!

Keep your voice down! Everyone can hear you.

Yes. Everyone is uncomfortable about this.

Well, no wonder!

When he took a six-month leave at work, no one phoned.

(low voice, almost unintelligible) It's because people don’t know what to say. And when you're away that long, after a while they start to talk.






It’s like they just expect him to pull himself together.

Well, what else can he do? Just lie there? Take pills and turn into a zombie?

They don’t “turn you into a zombie”.

How do you know?

Well, I –

OH GOD! Don’t tell me YOU’VE been conned into this!

I couldn’t stand it any longer, he couldn’t work, he felt useless, he was around the house all the time talking about suicide and how much he hated himself. I couldn't sleep either and I

Listen, everybody’s depressed now. Next year it’ll be something else. And every time, there’s a drug for it.

What else can we do?

Well, maybe there’s a higher purpose in all this. You know, as if you’re about to break through to joy.

Is that what they told you at that retreat?

Don’t get sarcastic with me.

I wasn’t! Don’t you hear me?




Not if you take that line with me. Listen, if you expect any support at all, from anyone, you’re both going to have to stop the pity party.

But this isn’t self-pity.

Who told you that, the “doctor”?

I read it in a book called

Oh, for God’s sake, a BOOK?

Yes, a book. I wanted to find out if

That’s worse than pills!

But better than turmeric.

Oh, now you’re being sarcastic! Hey, don't forget I'm your best friend! Who else is ever going to listen to all this? 

Nobody.

Right, so don't talk to anyone else. And don't tell me anything more. It's better that way.

(One of the women gets up and storms out. After a while, the other woman leaves. It is obvious she has been crying.)




Wednesday, March 12, 2014

Let's not "reduce" the stigma: let's throw it out!


Let's not "reduce" the stigma: let's throw it out!



Every day, and in every way, I am hearing a message. And it's not a bad message, in and of itself. 

It's building, in fact, in intensity and clarity, and in some ways I like to hear it.

It's about mental illness, a state I've always thought is mis-named: yes, I guess it's "mental" (though not in the same class as the epithet, "You're totally mental"), but when you call it mental illness, it's forever and always associated with and even attached to a state of illness. You're either ill or you're well; they're mutually exclusive, aren't they?




So the name itself is problematic to me. It seems to nail people into their condition. Worse than that, nobody even notices. "Mentally ill" is definitely preferable to "psycho", "nut case", "fucking lunatic", and the list goes on (and on, and on, as if it doesn't really matter what we call them). But it's still inadequate.

There's something else going on that people think is totally positive, even wonderful, showing that they're truly "tolerant" even of people who seem to dwell on the bottom rung of society. Everywhere I look, there are signs saying, "Let's reduce the stigma about mental illness."

Note they say "reduce", not banish. It's as if society realizes that getting rid of it is just beyond the realm of possibility. Let's not hope for miracles, let's settle for feeling a bit better about ourselves for not calling them awful names and excluding them from everything.





I hate stigma. I hate it because it's an ugly word, and if you juxtapose it with any other word, it makes that word ugly too. "Let's reduce the hopelessness" might be more honest. "Let's reduce the ostracism, the hostility, the contempt." "Stigma" isn't used very much any more, in fact I can't think of any other group of people it is so consistently attached to. Even awful conditions (supposedly) like alcoholism and drug abuse aren't "stigmatized" any more. Being gay isn't either. Why? Compassion and understanding are beginning to dissolve the ugly term, detach it and throw it away. 





"Let's reduce the stigma" doesn't help because it's miserable. It's the old "you don't look fat" thing (hey, who said I looked fat? Who brought the subject up?). Much could be gained by pulling the plug on this intractibly negative term. Reducing the stigma is spiritually stingy and only calls attention to the stigma.  

So what's the opposite of "stigmatized"?  Accepted, welcomed, fully employed, creative, productive, loved? Would it be such a stretch to focus our energies on these things, replacing the 'poor soul" attitude that prevails?





But so far, the stifling box of stigma remains, perhaps somewhat better than hatred or fear, but not much. Twenty years ago, a term used to appear on TV, in newspapers, everywhere, and it made me furious: "cancer victim". Anyone who had cancer was a victim, not just people who had "lost the battle" (and for some reason, we always resort to military terms to describe the course of the illness). It was standard, neutral, just a way to describe things, but then something happened, the tide turned, and energy began to flow the other way.

From something that was inevitably bound to stigma in the past, cancer came out of the closet in a big way, leading to all sorts of positive change that is still being felt. But first we had to lose terms like "victim", because they were unconsciously influencing people's attitudes. We had to begin to substitute words like "survivor" and even "warrior". 





One reinforced the other. The movement gave rise to much more positive, life-affirming, even accurate terminology. That's exactly what needs to happen here. We don't just need to "reduce the stigma": we need to CAN that term, spit on it, get rid of it once and for all, and begin to see our mental health warriors for who and what they really are. They lead the way in a daring revolution of attitudes and deeply-buried, primitive ideas, a shakeup and shakedown of prejudice that is shockingly late, and desperately needed.





Why do we need to do this so badly? We're caught and hung up on a negative, limiting word that is only keeping the culture in the dark.  I once read something in a memoir that had a profound effect on me: "Mental illness is an exaggeration of the human condition." This isn't a separate species. Don't treat it as such. It's you, times ten. It's me, in a magnifying mirror. Such projections of humanity at its finest and most problematic might just teach us something truly valuable. Why don't we want to look?