Saturday, January 19, 2013

Migraine: my amp goes to 11




This is a place I live in, don’t want to live in, never wanted to live in. I first moved in without my own knowledge, when it knocked me into outer space, a Van Gogh-scape of whirling light and pulsating white cogs. I had no idea what it was and assumed something was wrong with the taco I had eaten an hour earlier. I was only 21 years old and knew nothing about this. I don’t remember much except running to the bathroom to hurl, and it was unlike any flu I’d ever had because it seemed bottomless, the nausea was so extreme. Then in my far left-hand field of vision, seemingly suspended out in space, I saw the Cog, the flashing neon circle with the whirling spikes that I couldn’t blink away. Only later was my head taken over.

I think it held off for a dozen years. I don’t know what happened then. I think I was on lithium or some other drug that didn’t agree with me, but the nausea began to return. Then the rotten decaying feeling in the brain. This time I had a completely blank spot in the middle of my field of vision while I was out shopping, and barely got home safely.




A change of medication fixed it, or seemed to, until I began to experience the violent buck-and-wing of hormones which signals the end of fertilily.

(A sidebar: why does God, or whatever, seem to want us to stay fertile until we’re 95 years old? We’re at seven billion now, and the world is about to tip over, to explode from the strain, and yet, and yet, most women have something like forty years of active ovaries, of  relentlessly popping out eggs for more than half their lives, when they might want to use two.)

But the process, it just goes on forever, with all sorts of evil uncomfortable “symptoms” we have to live with. Ten years of it,  fertility violently breaking up like the Genesis Planet in Stark Trek 2, except dragged out in slow motion.

So I moved back into the neighbourhood, or was moved. Sometime in my 30s, I would guess. Most people use the expression “migraine headache”, which is a laugh.




The headache can be like a chainsaw to the temple (it’s generally on one side of the head), but it’s a mere frisson, a doily, a side-dish delicately sampled.

The main course is made up of many things. The day before yesterday, which was completely ruined by a “migraine headache”, the quality of my afternoon was announced by a queasiness that soon mushroomed into retching full-blown nausea.  Suddenly the spears of light coming in the window was unbearable, and then the sounds. . . not necessarily something loud, but anything shrill like my bird’s incessant shrieking, and – eventually – any sound at all. But smells are the worst: the gravy that we had with some mashed potatoes smelled like some metallic dirt factory, and I gagged on it.  Sound, smells, light, what else?

Any change in position. Any. I mean, changing from sitting to standing or vice-versa. My head balloons with an all-encompassing pain which does not go away if you sit down again. Bending to pick something up is obscene. I can’t even lie down in a dark room, like you’re supposed to, because my head expands geographically on the pillow. And don’t put something over your eyes to block out the unbearable light of your “dark room”: the smell of the fabric will make you gag.





Everyone says at this point, “Isn’t there anything you can take for this?” They say this with a mildly horrified, disturbed expression, as if they don’t want to hear any more (which they don’t).  “Just take some Tylenol. It works on headaches, it really does.” “Just put some heat, you know. . .” “Just put some cold. . .”

One-two-three, bibbidy-bobbidy-boo, and it’s fixed!

But they’ve never had one.

I did find “something” years ago called Imitrex, but I kept throwing up the pill. My old pattern was waking up with full-blown pain and violent nausea (who knows how I ever slept through it!). The idea is always to “intercept” the migraine before it gets really bad, but it was already really bad when I woke up, with no warning at all the night before. So taking the pill, a very very expensive pill, did no good at all because it ended up flushed. (Then comes the dilemma: do I take another one?)




That’s another thing, “triggers”. Everyone says things like “oh, it must be stress” or “do you have food allergies?”, or “Don’t eat old cheese.” (You should never say to anyone that you have any medical condition at all unless you want to be bombarded with advice that you never asked for. Most of these remedies seem to be herbal, especially if they sell them, or taken out of Farmer Brown’s Almanac from 1897.)





Then came a sort-of breakthrough, when the Imitrex, which sometimes worked well but mostly worked only half-assedly or not at all (thus shredding all hope) came out in a nasal spray. A one-dose puff of the most bitter substance known to man, which you could acridly taste going down the back of your throat.

Sometimes it worked miraculously well, raising the kind of hope I am now afraid of (which I sometimes call “the demon hope”). Just aborted it cleanly, no aftereffects except a stoned, euphoric, “high” feeling which was not unwelcome after feeling like shit for so many hours.





Sometimes it kind-of worked, after several hours of groaning and waiting, sitting motionless in a chair in a dark room, afraid to turn my head or even open my eyes.

But sometimes. . .

Sometimes, that $25/dose or so (it might have gone up since 2010, the last time I renewed it) is completely wasted. A couple of times the spray didn’t “deploy”, that is, it didn’t come out. The little spray device is powerful, spring-loaded, and you just push it once. But sometimes, nothing comes out. Either it’s not filled, or just won’t eject the contents.

This is one of many reasons why I haven’t renewed it since 2010. That, and so I won’t overuse it. Overusing any medication can render it ineffective, and it's ineffective often enough without making it any worse. So I tend to wait until I am in so much misery that I can’t go on without it. 





Another thing: the last couple of “headaches” decided to shift pattern completely, to flip upside-down in fact, so I awaken with only a mild car-sick feeling and hangover-y head, then experience a  relentless escalation, like someone very slowly turning up the volume on an old amplifier until it goes to eleven.

Soooooooooooo. . .




Thursday I guess it moved in, but as usual my memory is as hazy as the memory of a nightmare a few hours after waking. You think you’ll always remember it, but you don’t. That kind of grief and pain pulls down the shade.

This is Day 3, and though the Imitrex did seem to abort it after hours of escalating agony, I noticed it seemed to be back yesterday.




I have a theory about that. It doesn’t “come back”. This isn’t a “new” migraine, merely the “old” one deciding not to return, but to resume.

It’s a sprawling land mass, a geographical feature, parts of it submerged under water so you can’t see the perimeter, the borders, the vastness of it. All you know for sure is that you will fall in.

Along with their helpful advice to take an aspirin or swing a dead cat over your head at midnight, people tell you to “fight it as hard as you can”. This will mean approximately double the nausea, stress and indescribable head-pain, but hey, it’s what you’re supposed to do in this culture! Fight everything. Don’t give in, whatever you do.




Some fucking Freudian asshole might say I HAVE to give in because I am weak and/or want to crawl back into the womb. I look on web sites, and it depends: a lot of them, predictably, are bullshit, but some of them, surprisingly, say this is a medical condition, not a spiritual flaw, that it’s a neurological disorder with certain symptoms, chief among them NOT necessarily a headache.

Oliver Sacks got a whole book out of this, a ponderous tome, thick and dense and crammed with footnotes. He writes like a Victorian, in fact he IS one, misplaced in time,  his footsteps echoing through the dank halls of the Mutter Museum, peering at human specimens pickled in jars.

I have a copy of it somewhere but I never read it. I always lose my place when the footnotes cover more ground than the text. And that flyspeck type! No wonder this form of communication ended 150 years ago.












I swear it’s true, Doctor Sacks. It gives me a headache.

Thursday, January 17, 2013

They're wacky! They're fun! They're camel GIFs










I’m! The Sheik! of A! Ra! By!

Your Love! Be! Longs! To Me!

At Night! When You’re! A! Sleep!

Into! Your! Tent! I’ll Creep!


The! Stars! That Shine! A! Bove!

Will Light Our! Way! To Love!

You’ll Roam! This Land! With Me!

I’m The Sheik! Of A! Ra! By!




(blblblblblblb)




Yeah!



Heheheheh




(bleebleebleebleeeee!)




What? What?




(blblblblblblbl)





Phhhhhhh. . . bmmmmm.

Bob Dylan: the rise and fall






They’re selling postcards of the hanging

They’re painting the passports brown

The beauty parlor is filled with sailors

The circus is in town




Here comes the blind commissioner

They’ve got him in a trance

One hand is tied to the tight-rope walker

The other is in his pants




And the riot squad they’re restless

They need somewhere to go

As Lady and I look out tonight

From Desolation Row




Cinderella, she seems so easy

“It takes one to know one,” she smiles

And puts her hands in her back pockets

Bette Davis style




And in comes Romeo, he’s moaning

“You Belong to Me I Believe”

And someone says, “You’re in the wrong place 

my friend

You better leave”




And the only sound that’s left

After the ambulances go

Is Cinderella sweeping up

On Desolation Row




Now the moon is almost hidden

The stars are beginning to hide




The fortune-telling lady

Has even taken all her things inside

All except for Cain and Abel

And the hunchback of Notre Dame

Everybody is making love

Or else expecting rain




And the Good Samaritan, he’s dressing

He’s getting ready for the show

He’s going to the carnival tonight

On Desolation Row




Now Ophelia, she’s ’neath the window

For her I feel so afraid

On her twenty-second birthday

She already is an old maid

To her, death is quite romantic

She wears an iron vest

Her profession’s her religion

Her sin is her lifelessness




And though her eyes are fixed upon

Noah’s great rainbow

She spends her time peeking

Into Desolation Row




Einstein, disguised as Robin Hood

With his memories in a trunk

Passed this way an hour ago

With his friend, a jealous monk




He looked so immaculately frightful

As he bummed a cigarette

Then he went off sniffing drainpipes

And reciting the alphabet




Now you would not think to look at him

But he was famous long ago

For playing the electric violin

On Desolation Row




Dr. Filth, he keeps his world

Inside of a leather cup

But all his sexless patients

They’re trying to blow it up

Now his nurse, some local loser

She’s in charge of the cyanide hole

And she also keeps the cards that read

“Have Mercy on His Soul”




They all play on pennywhistles

You can hear them blow

If you lean your head out far enough

From Desolation Row




Across the street they’ve nailed the curtains

They’re getting ready for the feast

The Phantom of the Opera

A perfect image of a priest




They’re spoonfeeding Casanova

To get him to feel more assured

Then they’ll kill him with self-confidence

After poisoning him with words



And the Phantom’s shouting to skinny girls

“Get Outa Here If You Don’t Know

Casanova is just being punished for going

To Desolation Row”




Now at midnight all the agents

And the superhuman crew

Come out and round up everyone

That knows more than they do




Then they bring them to the factory

Where the heart-attack machine

Is strapped across their shoulders

And then the kerosene




Is brought down from the castles

By insurance men who go

Check to see that nobody is escaping

To Desolation Row




Praise be to Nero’s Neptune

The Titanic sails at dawn

And everybody’s shouting

“Which Side Are You On?”




And Ezra Pound and T. S. Eliot

Fighting in the captain’s tower

While calypso singers laugh at them

And fishermen hold flowers




Between the windows of the sea

Where lovely mermaids flow

And nobody has to think too much

About Desolation Row




Yes, I received your letter yesterday

(About the time the doorknob broke)

When you asked how I was doing

Was that some kind of joke?




All these people that you mention

Yes, I know them, they’re quite lame

I had to rearrange their faces

And give them all another name




Right now I can’t read too good

Don’t send me no more letters, no

Not unless you mail them

From Desolation Row




Bob Dylan
Desolation Row
with some help from
Lotte Lenya:
Alabama Song
from 
The Rise and Fall of the City of Mahagonny
by Kurt Weill and Bertolt Brecht